Syringomyelia Organizations

American Chronic Pain Association (ACPA) P.O. Box 850 Rocklin, CA   95677-0850 ACPA@pacbell.net http://www.theacpa.org Tel: 916-632-0922 800-533-3231 Fax: 916-652-8190	American Syringomyelia Alliance Project (ASAP) P.O. Box 1586 Longview, TX   75606-1586 info@asap.org http://www.asap.org Tel: 903-236-7079 800-ASAP-282 (272-7282) Fax: 903-757-7456
Christopher and Dana Reeve Foundation 636 Morris Turnpike Suite 3A Short Hills, NJ   07078 info@christopherreeve.org http://www.christopherreeve.org Tel: 973-379-2690 800-225-0292 Fax: 973-912-9433	March of Dimes Foundation 1275 Mamaroneck Avenue White Plains, NY   10605 askus@marchofdimes.com http://www.marchofdimes.com Tel: 914-428-7100 888-MODIMES (663-4637) Fax: 914-428-8203
National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291	National Spinal Cord Injury Association 1 Church Street #600 Rockville, MD   20850 info@spinalcord.org http://www.spinalcord.org Tel: 800-962-9629 Fax: 866-387-2196
Paralyzed Veterans of America (PVA) 801 18th Street, NW Washington, DC   20006-3517 info@pva.org http://www.pva.org Tel: 202-USA-1300 (872-1300) 800-424-8200 Fax: 202-785-4452	Spina Bifida Association of America 4590 MacArthur Blvd. NW Suite 250 Washington, DC   20007-4266 sbaa@sbaa.org http://www.spinabifidaassociation.org Tel: 202-944-3285 800-621-3141 Fax: 202-944-3295
Spinal Cord Society 19051 County Highway 1 Fergus Falls, MN   56537 http://members.aol.com/scsweb Tel: 218-739-5252 or 218-739-5261 Fax: 218-739-5262