Batten Disease Support and Research Association166 Humphries Drive
Reynoldsburg,
OH
43068
Tel: 800-448-4570
740-927-4298
Fax: 740-927-7683
EMail:
bdsra1@bdsra.orghttp://www.bdsra.orgDescription: International support and research networking organization for families of children and young adults with Batten Disease.
Sponsors education, advocacy, and support programs. Funds research, and sponsors a tissue donation program.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.