Von Hippel Lindau Family Alliance2001 Beacon Street
Suite 208
Boston,
MA
02135-7877
Tel: 617-277-5667
800-767-4VHL (4845)
Fax: 858-712-8712
EMail:
info@vhl.orghttp://www.vhl.orgDescription: Patient and family support and education organization that offers regional chapters and support meetings. Publishes several
brochures, a handbook, and a newsletter.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.