Dandy-Walker Syndrome Organizations

Dandy-Walker Alliance, Inc. 4422 Clearbrook Lane Kensington, MD   20895 submission@dandy-walker.org http://www.dandy-walker.org Tel: 301-919-2653	Guardians of Hydrocephalus Research Foundation 2640 East 28th Street Brooklyn, NY   11235 GHRF2618@aol.com http://ghrf.Homestead.com/ghrf.html Tel: 718-743-GHRF (4473) Fax: 718-743-1171
Hydrocephalus Association 870 Market Street Suite 705 San Francisco, CA   94102 info@hydroassoc.org http://www.hydroassoc.org Tel: 415-732-7040 888-598-3789 Fax: 415-732-7044	March of Dimes Foundation 1275 Mamaroneck Avenue White Plains, NY   10605 askus@marchofdimes.com http://www.marchofdimes.com Tel: 914-428-7100 888-MODIMES (663-4637) Fax: 914-428-8203
National Hydrocephalus Foundation 12413 Centralia Road Lakewood, CA   90715-1623 debbifields@nhfonline.org http://nhfonline.org Tel: 562-924-6666 888-857-3434 Fax: 562-924-6666	National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291