Amyloid Treatment & Research Program
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Events

Race to Beat Amyloid

March 1, 2008

This ski fun race is sponsored by family and friends of Bill Cunningham at Cannon Mountain. The proceeds of the event will support research efforts at the Amyloid Treatment and Research Program.

Pop's Run Benefit
June 29, 2008

Cantiague Park, Long Island, New York

For more information: 866-404-7539

www.popsrun.org


This fundraiser is sponsored by the Nassau Wings Motorcycle Club, as part of their annual “POP’S RUN” charity event, the proceeds of which are donated to the Boston Medical Center’s Amyloid Research efforts.

2nd Annual Search for a Cure

October 13, 2007

This community wide scavenger hunt is organized by the May Fund to raise money and awareness for Familial Amyloidosis.

Patients' Day
Nov 4, 2006
A special event for patients occurred on November 4, 2006 to coincide with the International Symposium on Amyloidosis.
XIth International Symposium on Amyloidosis
Nov 5-9, 2006
The XIth International Symposium on Amyloidosis was held on the Cape Cod seashore at the Marine Biological Laboratory in Woods Hole, MA.  The Marine Biological Laboratory is an educational institution dedicated to scientific discovery in biology and medicine. The keynote speaker was Dr. Stanley Prusiner.
News Archive

10.07.08 A report on AL-Base, the Amyloid Light Chain Database, has been accepted for publication in Amyloid: Journal of Protein Folding Disorders. AL-Base contains molecular information (both nucleotide and amino acid sequences) on more than 400 amyloid light chain proteins.

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3.13.08 Terry Peel testified to the U.S. House of Representatives today about the need for further support for research on amyloidosis.

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"July 2007: The Institute of Medicine of the National Academies of Science has published an update of their analysis of the health risks of Agent Orange that has reclassified AL amyloidosis as one of the diseases that may be associated with Agent Orange exposure, based upon "limited or suggestive evidence". This may make it easier for veterans with AL amyloidosis who were exposed to Agent Orange to receive compensation."

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