|
|
|
|
|
|
|
|
|
|
|
Opening Remarks |
|
|
|
Reed V. Tuckson, M.D.
SACGHS Chair |
|
|
|
Webcast
Transcript
|
|
|
|
|
Patents and Licensing Session |
|
|
|
|
Patenting and Licensing Fundamentals and the Nature of the Access Problem |
|
|
|
Debra Leonard, M.D., Ph.D.
Chair, SACGHS Task Force on Patents and Access |
|
|
|
Slides
Webcast
Transcript
|
|
|
|
|
Data and Analysis of the Impact of DNA-based Patents on Access to Genetic Technologies and Services |
|
|
|
Mildred K. Cho, Ph.D.
Associate Director, Stanford University Center for Biomedical Ethics
Associate Professor of Pediatrics (Genetics)
Stanford University School of Medicine |
|
|
|
Slides
Webcast
Transcript
|
|
|
|
|
The Role and Economic Impact of Gene Patents in Drug and Diagnostics Development |
|
|
|
Mark McCamish, M.D., Ph.D.
Chief Medical Officer
Perlegen Sciences |
|
|
|
Slides
Webcast
Transcript
|
|
|
|
|
Full Panel Roundtable Discussion and Full Committee Discussion and Next Steps |
|
|
|
Facilitator: Dr. Leonard |
|
|
|
Webcast
Transcript
|
|
|
|
|
Public Comments |
|
|
|
Webcast
Transcript
|
|
|
|
|
Updates from Working Groups on Direct-to-Consumer Marketing of Genetic Tests and Services |
|
|
|
|
FDA - FTC Collaboration - Dr. Gutman & Mr. Daynard |
|
|
|
Webcast
Transcript
|
|
|
|
|
Data Collection on the Public Health Impact - Mr. Bowen |
|
|
|
Webcast (included above)
Transcript
|
|
|
|
|
Update from Key Stakeholders on the Status of the Federal Genetic Information Nondiscrimination Legislation |
|
|
|
Michael J. Eastman
Director, Labor Law Policy, U.S. Chamber of Commerce
Co-Chair, GINE Coalition
and
Sharon F. Terry
President and CEO, Genetic Alliance
Chair, Coalition for Genetic Fairness |
|
|
|
Webcast
Transcript
|
|
|
|
|
Presentation of Certificates |
|
|
|
Webcast
Transcript
|
|
|
|
|
Next Steps and Concluding Remarks |
|
|
|
Dr. Tuckson |
|
|
|
Webcast
Transcript
|
|
|
|
|
ADJOURN |
|
|
|
Top of Page |