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SACGHS June 27, 2006 - Presentation Materials
Tenth Meeting - Day Two
Bethesda, Maryland

Opening Remarks  
  Reed V. Tuckson, M.D.
SACGHS Chair
 
  Webcast  Transcript   
 

Patents and Licensing Session  
 
  Patenting and Licensing Fundamentals and the Nature of the Access Problem  
  Debra Leonard, M.D., Ph.D.
Chair, SACGHS Task Force on Patents and Access
 
  Slides  Webcast  Transcript   
 
  Data and Analysis of the Impact of DNA-based Patents on Access to Genetic Technologies and Services  
  Mildred K. Cho, Ph.D.
Associate Director, Stanford University Center for Biomedical Ethics
Associate Professor of Pediatrics (Genetics)
Stanford University School of Medicine
 
  Slides  Webcast  Transcript   
 
  The Role and Economic Impact of Gene Patents in Drug and Diagnostics Development  
  Mark McCamish, M.D., Ph.D.
Chief Medical Officer
Perlegen Sciences
 
  Slides  Webcast  Transcript   
 
  Full Panel Roundtable Discussion and Full Committee Discussion and Next Steps  
  Facilitator: Dr. Leonard  
  Webcast  Transcript   
 
  Public Comments  
  Webcast  Transcript   
 

Updates from Working Groups on Direct-to-Consumer Marketing of Genetic Tests and Services  
 
  FDA - FTC Collaboration - Dr. Gutman & Mr. Daynard  
  Webcast  Transcript   
 
  Data Collection on the Public Health Impact - Mr. Bowen  
  Webcast (included above) Transcript   
 

Update from Key Stakeholders on the Status of the Federal Genetic Information Nondiscrimination Legislation  
  Michael J. Eastman
Director, Labor Law Policy, U.S. Chamber of Commerce
Co-Chair, GINE Coalition
and
Sharon F. Terry
President and CEO, Genetic Alliance
Chair, Coalition for Genetic Fairness
 
  Webcast  Transcript   
 
  Presentation of Certificates  
  Webcast  Transcript   
 

Next Steps and Concluding Remarks  
  Dr. Tuckson  
  Webcast  Transcript   
 

ADJOURN  
 


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