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Natcher Auditorium, NIH June 13-14,
2002
This two-day workshop will focus on the major unmet needs
faced by adults with sickle cell disease (SCD) and the development of
strategies to address them. Workshop participants will identify and describe
the social and economic problems and needs of adults with SCD as well as their
quality of life issues; their information and educational needs and those of
their providers, and their health care problems and needs. Following the
presentation and discussion of these issues and current programs to address
them, workshop participants will break out into several groups to begin the
process of developing objectives and strategies to meet the needs of this
community. The ultimate goal of the workshop will be to craft research
initiatives that will increase our knowledge and understanding of the problems
and needs of adults with SCD and to test solutions to meet those challenges.
Sections containing background and presentation
information will be added to these pages as the information becomes
available.
After the Workshop, look for the Workshop Report, which
will be posted as soon as it is available. |