Genetic Counseling, Support and Advocacy Groups Online

• Chromosome Help-Station
  www.chromosomehelpstation.com
  The Chromosome Help-Station provides support and information to families with rare chromosome disorders.
  
  
• Clinic Directory
  www.geneclinics.org/servlet/access?id=&key=&fcn=y&fw=1i1p&filename=/clinicsearch/searchclinic.html
  Database of genetics clinics, searchable by location, population served and specialty. Users must register once at: www.geneclinics.org before accessing information. Hosted by GeneTests/GeneClinics.
  
  
• Coalition for Genetic Fairness
  http://www.geneticfairness.org/index.html
  Advocacy group for federal legislation regarding genetics discrimination through the National Partnership for Women & Families.
  
  
• Family Village
  www.familyvillage.wisc.edu/index.htmlx
  Disability-related  resources
  
  
• Gene Tests/Gene Clinics
  www.geneclinics.org
  Comprehensive information on genetic testing and genetic counseling. Includes Educational Materials:
  • What is Genetic Testing?
  • Who Should Have A Genetics Consultation?
  • What is a Genetics Consultation?
  • Users must register before accessing this information.
    
    
• The Genetic Alliance
  www.geneticalliance.org
  Wide array of genetic-related information
  
  
• Genetic Centers, Clinics and Departments
  www.kumc.edu/gec/prof/genecntr.html
  Comprehensive resource list for genetic counseling, with links to genetic centers and clinics, associations and university genetics departments. Hosted by the University of Kansas Medical Center.
  
  
• Genetics and Rare Conditions Site
  www.kumc.edu/gec/support
  Information on genetic conditions and birth defects for professionals, educators and individuals, including national and international advocacy and support groups. Comprehensive list of resources organized by disease/condition. Hosted by the University of Kansas Medical Center.
  
  
• Locating Genetic Counseling/Testing Services: ResourceLink
  www.nsgc.org/resourcelink.cfm
  A searchable database of genetics counseling services. Search by location, name, institution, type of practice or specialty. Hosted by the National Society of Genetic Counselors.
  
  
• Mountain States Genetic Network (MoST GeNe)
  www.mostgene.org/topics/cclin01.htm
  Information on genetic counseling, including:
  • Indications For Genetic Counseling Referrals.
  • What to Expect from a Genetics Consultation.
    
    
• National Organization for Rare Disorders
  www.rarediseases.org
  Wide array of genetic-related information
  
  
• Online Genetic Support Group Directory
  www.mostgene.org/support/index.htm
  Alphabetic index of genetic disorders with links to associations, support groups and disease-related resources. Hosted by the Mountain States Genetic Network (MoSt).
  
  

Top of page

Last Reviewed: September 9, 2008