Facioscapulohumeral Muscular Dystrophy (FSHD) Society 3 Westwood Road Lexington, MA 02420 info@fshsociety.org http://www.fshsociety.org Tel: 781-275-7781 781-860-0501 Fax: 781-860-0599 |
Muscular Dystrophy Association 3300 East Sunrise Drive Tucson, AZ 85718-3208 mda@mdausa.org http://www.mda.org Tel: 520-529-2000 800-344-4863 Fax: 520-529-5300 |
Muscular Dystrophy Family Foundation 7220 U.S. 31 South Indianapolis, IN 46227 mdff@mdff.org http://www.mdff.org Tel: 317-923-6333 800-544-1213 Fax: 317-923-6334 |
Parent Project Muscular Dystrophy (PPMD) 158 Linwood Plaza Suite 220 Fort Lee, NJ 07024 info@parentprojectmd.org http://www.parentprojectmd.org Tel: 201-944-9985 800-714-KIDS (5437) Fax: 201-944-9987 |
International Myotonic Dystrophy Organization P.O. Box 1121 Sunland, CA 91041-1121 info@myotonicdystrophy.org http://www.myotonicdystrophy.org Tel: 818-951-2311 866-679-7954 |
National Institute of Arthritis and
Musculoskeletal and Skin Diseases (NIAMS) National Institutes of Health, DHHS 31 Center Dr., Rm. 4C02 MSC 2350 Bethesda, MD 20892-2350 NIAMSinfo@mail.nih.gov http://www.niams.nih.gov Tel: 301-496-8190 877-22-NIAMS (226-4267) |
National Institute of Child Health and Human
Development (NICHD) National Institutes of Health, DHHS 31 Center Drive, Rm. 2A32 MSC 2425 Bethesda, MD 20892-2425 http://www.nichd.nih.gov Tel: 301-496-5133 Fax: 301-496-7101 |
Centers for Disease Control and
Prevention (CDCP) U.S. Department of Health and Human Services 1600 Clifton Road, N.E. Atlanta, GA 30333 inquiry@cdc.gov http://www.cdc.gov Tel: 800-311-3435 404-639-3311/404-639-3543 |