The Friedreichs Ataxia Research Alliance (FARA) serves as a catalyst in public, private, scientific and patient-family communities, to build worldwide support and collaborations that drive medical research advances for Friedreichs ataxia.
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Newsletter
SCIENTIFIC NEWS
- Diagnosis and treatment of Friedreich ataxia: a European perspective.
- Bacterial frataxin CyaY is the gatekeeper of iron-sulfur cluster formation catalyzed by IscS.
- Peptide nucleic acid (PNA) binding and its effect on in vitro transcription in friedreich's ataxia triplet repeats.
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May 15, 2009
Van Schoick Benefit Bash and Golf Tournament - Athens, GA
www.BenefitBash.org
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May 16, 2009
Benefit Dance/ Irish Music - Norwood, MA bwmrowland@comcast.net
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May 17, 2009
Race for the CureWalk/Run - Liberty Township, OH tammyluebbe@aol.com
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May 17, 2009
Carolinas' WE Foundation Walk/ Run - Raleigh, North Carolina info@curefa.org
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May 19, 2009
Heineken with a Heart
Outback Happy Hour
Atlanta, GA
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May 30, 2009
Outback Luncheon
Baton Rouge, LA -
June 6, 2009
The 9th Annual Outback Steakhouse Charity Clay Classic
Pintail Point Farms
Queenstown, Maryland www.cbacharities.com/events.html
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April 13, 2009
Mom tackles 200-mile bike trip for love -
April, 2009
FARA Funded Researchers' Work Being Presented at the BSGT Meeting and Selected for "Best Presentation" Prize -
March 23, 2009
Ride Ataxia -
March 12, 2009
Cyclist with Rare Neuromuscular Disorder to Arrive in Seattle March 19 Completing 4 Day Cycling Journey -
March 3, 2009
New Film, Directed by Mary Stuart Masterson, Features Kristen Stewart as a Young Woman with the Neuro-degenerative disease Friedreich's ataxia - NEW CD RELEASE, 12/18/08: THE VOYCES ~ A NEW DAY NEVER FARAWAY : A special compilation of live and (mostly) previously unreleased songs - 100% of the proceeds go directly to The Friedreich's Ataxia Research Alliance (FARA)
UPCOMING EVENTS
FARA NEWS
Online grant submission allows for faster evaluation and approval of applications.
Listings of ongoing trials -
Join the Patient Registry which matches patients to the appropriate clinical trials.
You can have an impact on research advancement by providing critical funds. REQUEST KIT