Trans-NIH Research: Scientific Collaboration for the 21st Century

Educational Campaigns and Clearinghouses

ClinicalTrials.gov (Registry of Clinical Research)

ClinicalTrials.gov offers up-to-date information for locating federally and privately supported clinical trials for a wide range of diseases and conditions. ClinicalTrials.gov currently contains close to 60,000 trials sponsored by the National Institutes of Health, other federal agencies, and private industry. Studies listed in the database are conducted in all 50 States and in 157 countries.

The U.S. National Institutes of Health (NIH), through its National Library of Medicine (NLM), has developed this site in collaboration with the Food and Drug Administration (FDA), as a result of the FDA Modernization Act to provide a public resource of information on clinical research.

NIH Participants: NLM, NCI, NEI, NHLBI, NHGRI, NIA, NIAAA, NIAID, NIAMS, NICHD, NIDCD, NIDCR, NIDDK, NIDA, NIEHS, NIGMS, NIMH, NINDS, NINR, CC, NCCAM

Genetics and Rare Disease Information Center (GARD)

The Genetic and Rare Diseases Information Center (GARD) provides accurate, reliable and current information on genetic and rare diseases to patients and families, health care professionals and biomedical researchers. GARD was established by the National Human Genome Research Institute (NHGRI) and the NIH Office of Rare Diseases (ORD) in the Office of Disease Prevention (ODP).

NIH Participants: NHGRI and ODP/ORD

HBO Addiction Project

The National Institute on Drug Abuse (NIDA) and the National Institute on Alcohol Abuse and Alcoholism (NIAAA) partnered with Home Box Office (HBO) and the Robert Wood Johnson Foundation on a groundbreaking documentary called Addiction. The feature-length film is part of a multimedia public health campaign that also includes a web site, book, and community outreach activities. The goal of this project, launched in March 2007, is to help Americans understand addiction as a chronic yet treatable brain disease, spotlighting promising scientific advancements. The project received the 2007 Governor’s Award from the Academy of Television Arts and Sciences (an Emmy award).

NIH Participants: NIDA and NIAAA

Human Genetic Variation Supplement Project

The Human Genetic Variation Supplement Project is a creative, inquiry-based instruction program, designed to promote active learning and stimulate student interest in medical topics. The Project has developed a curriculum supplement that provides five basic activities that focus on the basics of human genetics, its potential to improve human health and its application towards understanding human evolution. More than 25,000 copies of the curriculum supplement have been distributed to high school teachers. The supplement was developed by the NIH Office of Science Education (OSE) in the NIH Office of Science Policy (OSP) with the support of the National Human Genome Research Institute (NHGRI).

NIH Participants: NHGRI and OSP/OSE

MedlinePlus and MedlinePlus en español

Health information portals help bring together NIH information and other government and authoritative health information for patients, families and professionals. MedlinePlus links to over 4,500 consumer health web documents in English, and over 651 in Spanish, from across NIH.

NIH Participants: NLM, NCI, NEI, NHLBI, NHGRI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDCD, NIDCR, NIDDK, NIDA, NIEHS, NIGMS, NIMH, NINDS, NINR, CC, NCCAM, NCMHD, and OCPL

National Asthma Education and Prevention Program (NAEPP)

The National Asthma Education and Prevention Program (NAEPP) was initiated in March 1989 to address the growing problem of asthma in the United States. The NAEPP works with intermediaries including major medical associations, voluntary health organizations, and community programs to educate patients, health professionals, and the public. The NAEPP seeks to enhance the quality of life for patients with asthma and decrease asthma-related morbidity and mortality by improving asthma awareness, diagnosis, and treatment. The National Heart, Lung, and Blood Institute (NHLBI) leads the NAEPP.

NIH Participants: NHLBI, NIAID, and NIEHS

National Diabetes Education Program (NDEP)

The National Diabetes Education Program is coordinated by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and the Centers for Disease Control and Prevention (CDC) and includes over 200 partners at the federal, state, and local levels, working together to reduce the morbidity and mortality associated with diabetes.

NIH Participants: NIDDK, NEI, and NIA

National Eye Health Education Program (NEHEP) Partnership

The National Eye Health Education Program Partnership was established by the National Eye Institute (NEI) to promote collaboration on eye health education for higher risk audiences including people with diabetes, people over age 60, and people with a family history of eye disease.

NIH Participants: NEI, NIDDK, and NIA

NIH Celiac Disease Awareness Campaign

The NIH Celiac Disease Awareness Campaign provides current, comprehensive, science-based information about the symptoms, diagnosis, and treatment of celiac disease, also known as celiac sprue, nontropical sprue, and gluten-sensitive enteropathy. Celiac disease is an immune reaction to gluten, a protein found in wheat, rye, and barley. An estimated 1 percent of all Americans suffer from celiac disease, though many have never been diagnosed and are not receiving treatment. The National Institute of Arthritis and Musculoskeletal and Skin Disease (NIAMS) and the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) coordinate this campaign.

NIH Participants: NIAMS and NIDDK

NIH Osteoporosis and Related Bone Diseases – National Resource Center

The NIH Osteoporosis and Related Bone Diseases – National Resource Center provides patients, health professionals, and the public with an important link to resources and information on metabolic bone diseases. The mission of NIH ORBD~NRC is to expand awareness and enhance knowledge and understanding of the prevention, early detection, and treatment of these diseases as well as strategies for coping with them. The NIH Osteoporosis and Related Bone Diseases – National Resource Center is supported by the National Institute of Arthritis and Musculoskeletal and Skin Disease (NIAMS).

NIH Participants: NIAMS, NIA, NICHD, NIDCR, NIDDK, and ORWH

NIHSeniorHealth.gov

The National Institute on Aging (NIA) and the National Library of Medicine (NLM) collaborate on the conceptualization, design, and expansion of this senior-friendly website. NIHSeniorHealth features health information on a variety of topics pertinent to older adults with additional topics are being added on an ongoing basis.

NIH Participants: NIA, NLM, NCI, NEI, NHLBI, NIAMS, NIAID, NIDA, NIDCD, NIDCR, NIDDK, NIGMS, NIMH, NINDS, and NCCAM

Usher Syndrome

Usher syndrome is the most common condition that affects both hearing and vision. This website includes basic facts and resources for patients and families, information about clinical trials, and funding information for scientists. The National Eye Institute (NEI) and the National Institute of Deafness and Other Communicative Disorders (NIDCD) provide the content for this website.

NIH Participants: NEI and NIDCD

We Can! “Ways to Enhance Children’s Activity and Nutrition”

We Can! is a national program designed for families and communities to help children maintain a healthy weight. This program is coordinated by the National Heart, Lung, and Blood Institute (NHLBI).

NIH Participants: NHLBI, NCI, NIDDK, and NICHD

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