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The Role of the National Human Genome Research Institute (NHGRI) in the Federal Legislative Process
The following is a translation into Web format of a poster presentation by Tim Leshan, Jennifer Leib, Barbara Fuller, Laura Lyman Rodriguez, Karen DeLeon, Jason Beekman, Mini Nair and Alan Guttmacher, all members of the Policy and Program Analysis Branch, Office of the Director, National Human Genome Research Institute (NHGRI), National Institutes of Health (NIH).The Policy and Programming Analysis Branch in the Office of the NHGRI director analyzes and tracks federal policy and legislation that may affect the institute's mission, and develops public policy recommendations for the director.
The Genetic Information Nondiscrimination Act of 2003 (S. 1053), was passed by the U.S. Congress on October 14, 2003 and awaits the signature of the president.
This presentation outlines the salient points of The Act, which serves as a recent and relevant example of legislation related to issues of genetics and genomics, including NHGRI's involvement in the process that may lead to its enactment. If S. 1053 is enacted, it will have a profound effect on genomic research and medicine.
Last Reviewed: October 28, 2008
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