Introduction

Click here for Sample Information Related to RFA 08-015 "Chronic Kidney Disease Biomarker Discovery and Validation Consortium" On July 1, 2003, The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) of the National Institutes of Health (NIH) established Central NIDDK Repository for biosamples and data collected in clinical studies. The purpose of the Central Repository is to expand the usefulness of these studies by providing access to the biosamples and data to a wider research community beyond the end of the study.

NEW RELEASE: Automated Data Request System (ADRS) is available to data requestors. Please click here to get started. T1DGC Data: The Type 1 Genetics Consortium (T1DGC) study data have been posted and curation is completed. DCCT/EDIC Genotype Data: The Type 1 Diabetes Control and Complications Trial/ Epidemiology of Diabetes Interventions and Complications (DCCT/EDIC) genotype data are available on dbGAP. DCCT/EDIC Data: New version of The Type 1 Diabetes Control and Complications Trial/ Epidemiology of Diabetes Interventions and Complications (DCCT/EDIC) study data have been posted and curation is completed. GoKind Genotype Data: The Genetics of Kidneys in Diabetes (GoKind) genotype data are available on dbGAP. CRISP Study Samples: The Consortium for Radiological Imaging Studies of Polycystic Kidney Disease (CRISP) Study samples are available. SISTEr Study Data: Stress Incontinence Surgical Treatment Efficacy Trial (SISTEr) data from the Urinary Incontinence Treatment Network (UITN) have been posted and curation is complete. The 6 additional studies for DCCT/EDIC study have been posted. Click here to get detailed information. GoKind Data: The Genetics of Kidneys in Diabetes (GoKinD) data have been posted and curation is complete. Virahep-C Main Study Data and Samples: The Viral Resistance to Antiviral Therapy of Chronic Hepatitis C (Virahep-C) Main Study data and samples are available. Virahep-C Ancillary Study Data: The Viral Resistance to Antiviral Therapy of Chronic Hepatitis C (Virahep-C) Ancillary Study data have been posted and curation is completed.     Click here for instructions to request data.     Click here for instructions to request samples.

COMING SOON: SPLIT: Studies in Pediatric Liver Transplantation (Summer 2009). FIND: Family Investigation of Nephropathy of Diabetes Consortium. Automated Sample Request System (ASRS) will be available to sample requestors soon.

There are three Repositories: Biosample Repository - Fisher BioServices, Inc (14665 Rothgeb Drive, Rockville, MD 20850) Receives biosamples collected in many different studies, stores the samples under optimal conditions, and distributes them to qualified investigators. The Contractor for the Biosample Repository is Fisher Bioservices Corporation of Rockville, MD. A complete statement of work for this contract can be found here. (PDF, 120KB) Genetics Repository - Rutgers, The State University of New Jersey (Rutgers Lab) (604 Allison Road, Nelson Labs C112, Piscataway, NJ 08854) Receives blood samples collected in many different studies, and processes them to create immortalized cell lines, and DNA samples. In addition, the Genetics Repository also cryopreserves blood cells, extracts DNA from blood samples, stores samples of DNA under optimal conditions, and distributes DNA samples to qualified investigators. The Contractor for the Genetics Repository is Rutgers, The State University of New Jersey, New Brunswick, NJ. A complete statement of work for this contract can be found here.(PDF, 121KB) Data Repository - RTI International (3054 Cornwallis Rd, Research Triangle Park, NC 27709) Receives, archives, maintains and distributes databases or parts of databases from studies. In addition, the Data Repository analyzes stored data in response to inquiries, assists ongoing studies in preparing data for eventual archiving, coordinates cross-referencing between the three Repositories, and maintains the Central Repository website. The Contractor for the Data Repository is Research Triangle Institute, Research Triangle Park, NC. A complete statement of work for this contract can be found here. (PDF, 111KB) For more information about the Central Repository, please read the Frequently Asked Questions. Technical inquiries should be sent to: Rebekah S. Rasooly, Ph.D., Division of Kidney, Urologic and Hematologic Disease, NIDDK, NIH, Bethesda, MD 20892, 301-594-6007, rr185i@nih.gov Operational inquiries should be sent to: Amanda Flynn, RTI International, Research Triangle Park, NC, 919-316-3497, aflynn@rti.org