International Myotonic Dystrophy OrganizationP.O. Box 1121
Sunland,
CA
91041-1121
Tel: 818-951-2311
866-679-7954
EMail:
info@myotonicdystrophy.orghttp://www.myotonicdystrophy.orgDescription: International foundation dedicated to improved management and treatment of Myotonic Dystrophy. Supports patients with information
and services worldwide.
Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation,
or patient support. They are not part of the Federal Government and they may not be tax-exempt.