National Tay-Sachs and Allied Diseases Association2001 Beacon Street
Suite 204
Brighton,
MA
02135
Tel: 617-277-4463
800-90-NTSAD (906-8723)
Fax: 617-277-0134
EMail:
info@ntsad.orghttp://www.ntsad.orgDescription: Supports efforts to improve the treatment and prevention of Tay-Sachs, Canavan, and related genetic diseases, and provides
information and support services to individuals and families affected by these diseases, as well as the public-at-large. The
strategies for achieving these goals include public and professional education, research, genetic screening, family services,
and advocacy.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.