Moebius Syndrome FoundationP.O. Box 147
Pilot Grove,
MO
65276
Tel: 660-834-3406
Fax: 660-882-3018
EMail:
vickimc@iland.nethttp://www.moebiussyndrome.comDescription: Non-profit organization that provides individuals and families with a support network; promotes public and professional education
about the disorder, and promotes and funds research.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.