Facioscapulohumeral Muscular Dystrophy (FSHD) Society3 Westwood Road
Lexington,
MA
02420
Tel: 781-275-7781
781-860-0501
Fax: 781-860-0599
EMail:
info@fshsociety.orghttp://www.fshsociety.orgDescription: Facilitates support groups, publishes a newsletter, organizes conferences and meetings, and awards research grants towards
the prevention, cause and treatment of FacioScapuloHumeral muscular dystrophy worldwide. Provides public awareness of FSHD
by providing information, referrals, education, and advocacy programs and services. Promotes collaborative research and collects
and disseminates research information.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.