Delayed speech facial asymetry strabismus ear lobe creases
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- Support Groups (Found: 4 Resources)
Groups providing a wide range of services, supportive resources, and information
- Umbrella Organizations
- Live Chat
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The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
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RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Scientific Conferences (Found: 1 Resource)
Completed and upcoming scientific conferences and programs that have been sponsored by the National Institutes of Health
- Upcoming Conferences
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The First Workshop on Epigenetic Basis of Intellectual and Developmental Disabilities (IDD), May 28, 2009 - May 29, 2009
Location: 6100 Executive Blvd., 5th floor conference room, Rockville, MD
Description: The purpose of this workshop is to begin to lay the foundation for initiatives that would advance epigenetic/systems biology research relevant to IDD. Specifically, Mental Retardation and Developmental Disabilities (MRDD) Branch, NICHD, may issue a Program Announcement focused on IDD as one of the products of this workshop. The goal of this workshop is to bring together leading scientists in the fields of epigenetics and systems science and appropriate representatives from advocacy groups to identify research needs and advise the Institute in setting the priorities for next 2 to 5 years.
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The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.