Crigler Najjar syndrome, type 1
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- More Information (Found: 2 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
- General
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The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Crigler Najjar syndrome, type 1. Click on the link to go to OMIM and review these resources.
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PubMed lists journal articles that discuss Crigler Najjar syndrome, type 1. Click on the link to go to PubMed and review citations to these articles.
- Support Groups (Found: 6 Resources)
Groups providing a wide range of services, supportive resources, and information
- Umbrella Organizations
- Disease-Specific Organizations
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American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038-4810
Helpline (24 hours, 7 days a week): 1-800-465-4837 or 1-888-443-7222
Telephone: 1-800-676-9340 or (212) 668-1000
Fax: (212) 483-8179
E-mail: info@liverfoundation.org
Web site: www.liverfoundation.org
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Crigler-Najjar Association
3134 Bayberry Street
Witchita KS 67226
Email: mauckc@msn.com
Web site: www.criglenajjar.com
- Live Chat
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The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
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RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Services (Found: 2 Resources)
Links to Web sites that offer services, such as tools to locate specialists, specialty clinics, genetic services, and genetic testing laboratories
- Testing
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GeneTests lists laboratories offering clinical genetic testing for this condition. Clinical genetic tests are ordered to help diagnose a person or family and to aid in decisions regarding medical care or reproductive issues. Talk to your health care provider or a genetic professional to learn more about your testing options.
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The University of Colorado DNA Diagnostic Testing laboratory offers genetic testing for Crigler-Najjar syndrome. Click here for more information.
- More Search Tools (Found: 1 Resources)
Resources to help you find more information on this topic
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The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.