Waldmann disease
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Waldmann disease is a digestive disorder characterized abnormally enlarged lymph vessels supplying the lining of the small intestine. The cause of Waldmann disease is unknown. Signs of Waldmann disease include loss of lymphatic fluid into the gastrointestinal tract, protein-losing enteropathy, too little albumin in the blood, reduced levels of antibodies, and immunodeficiency. Symptoms include swelling in the legs and abdominal discomfort. For many patients, treatment of Waldmann disease involves long term diet therapy.[1]
References
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Ballinger AB. NORD Guide to Rare Disorders. In: . Intestinal Lymphangiectasia. :; 2003:
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eMedicine provides information on this topic. Click on the link to view this information. You may need to register to view the medical textbook, but registration is free
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The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit voluntary health organizations serving people with rare disorders. Click on the link to view information on this topic.
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The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Waldmann disease. Click on the link to go to OMIM and review these resources.
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PubMed lists journal articles that discuss Waldmann disease. Click on the link to go to PubMed and review citations to these articles.
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The MERCK Manual has an information page on Waldmann disease. Click on The MERCK Manual to view the information page.
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Lymphatic Research Foundation
100 Forest Drive
East Hills, NY 11548
Phone: (516) 625-9675
Fax: (516) 625-9410
Email: lrf@lymphaticresearch.org
Web: www.lymphaticresearch.org
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MUMS National Parent to Parent Network puts parents in touch with other parents who have children with this condition or similar symptoms.
MUMS National Parent to Parent Network
150 Custer Court
Green Bay, Wisconsin 54301-1243
Toll-free: 877-336-5333 (Parents only please)
Telephone: 920-336-5333
Fax: 1-920-339-0995
E-mail: mums@netnet.net
Web site: http://www.netnet.net/mums/
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The Lymphatic Research Foundation is establishing a National Patient Registry Tissue/Cell Bank for Lymphatic Diseases which will provide researchers with fresh tissue, cell samples, and clinical data to study the development and functioning of the lymphatic system in order to develop improved treatments and find a cure for lymphatic diseases, lymphedema, and related disorders. Click on the link above to learn more about how you can participate in the Patient Registry.
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