Antiphospholipid syndrome
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Antiphospholipid syndrome is an autoimmune disorder. It is characterized by high levels of multiple different antibodies that are associated with clots in the arteries and veins. Symptoms vary and can include blood clots, miscarriage, rash, chronic headaches, dementia, and seizures. Treatment involves thinning the blood to reduce clotting.[1]
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- More Information (Found: 10 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
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The Lupus Foundation of America has an information page on lupus and antiphospholipid antibodies. Click on Lupus Foundation of America to view the information page.
- General
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Orphanet is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge. Click on the link to read information on this topic.
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MeSH® (Medical Subject Headings) is a terminology tool used by the National Library of Medicine. Click on the link to view information on this topic.
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The National Institute of Neurological Disorders and Stroke (NINDS) collects and disseminates research information related to neurological disorders. Click on the link to view information on this topic.
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The National Human Genome Research Institute's (NHGRI) mission encompasses a broad range of studies aimed at understanding the structure and function of the human genome and its role in health and disease. Click on the link to view the information page on this topic.
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The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Antiphospholipid syndrome. Click on the link to go to OMIM and review these resources.
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PubMed lists journal articles that discuss Antiphospholipid syndrome. Click on the link to go to PubMed and review citations to these articles.
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UpToDate for patients has an information page on antiphospholipid syndrome. Click on UpToDate to view the information page.
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The March of Dimes has an information page on thrombophilia and pregnancy. Click on March of Dimes to view the information page.
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The MayoClinic.com has a information page on antiphospholipid syndrome. Click on MayoClinic.com to view the information page.
- Support Groups (Found: 10 Resources)
Groups providing a wide range of services, supportive resources, and information
- Umbrella Organizations
- Disease-Specific Organizations
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American Autoimmune Related Diseases Association
22100 Gratiot Avenue
Eastpointe
East Detroit, MI 48201-2227
Toll free: 800-598-4668
Telephone: 586-776-3900
Fax: 586-776-3903
E-mail: aarda@aarda.org
Web site: http://www.aarda.org
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Autoimmune Information Network, Inc.
P.O. Box 4121
Brick, NJ 08723
Telephone: 732-262-0450
Web site: http://www.aininc.org
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The National Alliance for Thrombosis and Thrombophilia
PO Box 66018
Washington DC 20035-6018
Phone: 914-220-5040
Toll-free: 877-466-2568
E-mail: info@nattinfo.org
Web site: http://www.nattinfo.org/
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Lupus Foundation of America
2000 L Street, N.W.
Suite 710
Washington, DC 20036
Toll-free: 1-800-558-0121 (English)
Toll-free: 1-800-558-0231 (en español)
Phone: 202-349-1155
Fax: 202-349-1156
Web site: http://www.lupus.org/
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APS Foundation of America, Inc.
P. O. Box 801
LaCrosse, WI 54602-0801
On-line e-mail form: http://www.apsfa.org/contact.htm
Web site: http://www.apsfa.org/
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The Hughes Syndrome Foundation
Louise Coote Lupus Unit
Gassiot House
St Thomas' Hospital London
SE1 7EH
Phone: 020 7188 8217
E-mail: hsf@btconnect.com
Web site: http://www.hughes-syndrome.org/
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The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
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RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Research & Clinical Trials (Found: 2 Resources)
Resources where you may find research studies and clinical trials
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ClinicalTrials.gov lists trials that are studying or have studied Antiphospholipid syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
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The Rare Thrombotic Diseases Consortium is one of ten consortia of the Rare Diseases Clinical Research Network (RDCRN), a Network established by the National Institutes of Health (NIH). Click on the link above to learn more about the consortium.
- More Search Tools (Found: 1 Resources)
Resources to help you find more information on this topic
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The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.