Neurofibromatosis type 5
Please note that the links contained on this search results page may take you
to sites outside of the NIH. (See Disclaimer under Site Policies for details.)
For more information about Neurofibromatosis type 5 click on the boxes below:
Click arrows to expand or collapse a Resource Section.
Show All Resources
Hide All Resources
- More Information (Found: 1 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
- General
-
PubMed lists journal articles that discuss Neurofibromatosis type 5. Click on the link to go to PubMed and review citations to these articles.
- Support Groups (Found: 6 Resources)
Groups providing a wide range of services, supportive resources, and information
- Umbrella Organizations
- Disease-Specific Organizations
-
The Neurofibromatosis Association
Quayside House
38 High Street, Kingston-on-Thames
SURREY KT1 1HL
Phone: 44(0)208 439 1234
Fax: 44(0)208 439 1200
E-mail: nfa@zetnet.co.uk
Web site: http://www.nfauk.org
-
The Children's Tumor Foundation
95 Pine Street, 16th floor
New York, N.Y. 1005
Telephone: (212) 344-6633
Toll Free: (800) 323-7938
E-mail: info@ctf.org
Web site: http://www.ctf.org/
- Live Chat
-
The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
-
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Services (Found: 1 Resources)
Links to Web sites that offer services, such as tools to locate specialists, specialty clinics, genetic services, and genetic testing laboratories
- Healthcare Professional Online Directory
-
The Children's Tumor Foundation (CTF) has developed a online directory that can direct you to physicians that have experience with neurofibromatosis. To locate a physician, click on the CTF link. Alternatively, you can get help with a physician referral by contacting Corinne McGown via email: cmcgown@ctf.org or phone: (212) 344-6633 x 227.
- More Search Tools (Found: 1 Resources)
Resources to help you find more information on this topic
-
The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.