Alzheimer’s Disease Education and Referral (ADEAR) Center
P.O. Box 8250
Silver Spring, MD 20907-8250
800-438-4380 (toll-free)
www.nia.nih.gov/Alzheimers
This service of the National Institute on Aging (NIA) offers information and publications on diagnosis, treatment, patient care, caregiver needs, long-term care, education and training, and research related to Alzheimer’s disease. Staff members answer telephone, email, and written requests and make referrals to local and national resources. The ADEAR website offers free, online publications in English and Spanish; email alerts and online Connections newsletter registration; an AD clinical trials database; the AD Library database; and more.
Alzheimer’s Association
225 North Michigan Avenue, Suite 1700
Chicago, IL 60601-7633
800-272-3900 (toll-free)
www.alz.org
The Alzheimer’s Association is a national, non-profit organization with a network of local chapters that provide education and support for people diagnosed with AD, their families, and caregivers. Chapters offer referrals to local resources and services and spon-sor support groups and educational programs. Online and print publications are also available. The Association also funds AD research.
Alzheimer’s Foundation of America
322 Eighth Avenue, 7th Floor
New York, NY 10001
866-232-8484 (toll-free)
www.alzfdn.org
The Alzheimer’s Foundation of America provides care and services to individuals confronting dementia and to their caregivers and families, through member organizations dedicated to improving quality of life. Services include a toll-free hotline, consumer publications and other educational materials, and conferences and workshops.
Dana Alliance for Brain Initiatives
745 Fifth Avenue, Suite 900
New York, NY 10151
212-223-4040
www.dana.org/danaalliances
The Dana Alliance for Brain Initiatives, a non-profit organization of more than 265 leading neuroscientists, helps advance public awareness about the progress and promise of brain research and disseminates information about the brain.
CAREGIVER SUPPORT AND SERVICES
Children of Aging Parents
P.O. Box 167
Richboro, PA 18954-0167
800-227-7294 (toll-free)
www.caps4caregivers.org
This nonprofit organization provides information and referrals for nursing homes, retirement communities, elder-law attorneys, adult day-care centers, insurance providers, respite care, assisted living centers, support groups, and State and county agencies. It also offers fact sheets, a newsletter, and conferences and workshops.
Eldercare Locator
800-677-1116 (toll-free)
www.eldercare.gov
Eldercare Locator is a nationwide, directory-assistance service helping older people and their caregivers locate local support and resources. It is funded by the U.S. Administration on Aging, whose website at www.aoa.gov also features AD information for families, caregivers, and health professionals.
Family Caregiver Alliance
180 Montgomery Street, Suite 1100
San Francisco, CA 94104
800-445-8106 (toll-free)
www.caregiver.org
The Family Caregiver Alliance is a nonprofit organization that offers support services and information for people caring for adults with AD, stroke, traumatic brain injuries, and other cognitive disorders.
National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
800-896-3650 (toll-free)
301-942-6430
www.thefamilycaregiver.org
The National Family Caregivers Association helps educate and support people who care for loved ones with chronic illness, disability, or the frailties of old age. The Association offers an online library of information and educational materials, workshops, and other resources.
National Hospice and Palliative Care Organization
1700 Diagonal Road, Suite 625
Alexandria, VA 22314
800-658-8898 (toll-free)
www.nhpco.org
This nonprofit organization works to enhance the quality of life for people who are terminally ill. It provides information, resources, and referrals to local hospice services, and offers publications and online resources.
Well Spouse Association
63 West Main Street, Suite H
Freehold, NJ 07728
800-838-0879 (toll-free)
www.wellspouse.org
The nonprofit Well Spouse Association gives support to spouses and partners of people who are chronically ill and/or disabled. It offers support groups and a newsletter.
RESEARCH AND CLINICAL TRIALS
Alzheimer’s Disease Cooperative Study
University of California, San Diego
9500 Gilman Drive
La Jolla, CA 92093-0949
858-622-5880
http://adcs.ucsd.edu
The Alzheimer’s Disease Cooperative Study (ADCS) is a cooperative agreement between NIA and the University of California, San Diego, to advance research in the development of drugs to treat AD. The ADCS is a consortium of medical research centers and clinics working to develop clinical trials of medicines to treat behavioral symptoms of AD, improve cognition, slow the rate of decline caused by AD, delay the onset of AD, or prevent the disease altogether. The ADCS also develops new and more reliable ways to evaluate patients enrolled in clinical trials.
Alzheimer Research Forum
www.alzforum.org
The Alzheimer Research Forum, an online community and resource center, offers professionals and the general public access to an annotated index of scientific papers, research news, moderated discussions on scientific topics, libraries of animal models and antibodies, and directories of clinical trials, conferences, jobs, and research-funding sources.
ClinicalTrials.gov
www.ClinicalTrials.gov
ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. Users can search for clinical trials and find information about each trial’s purpose, who may participate, locations, and phone numbers for more details.
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