Von Hippel-Lindau Disease (VHL) Organizations

Genetic Alliance 4301 Connecticut Avenue, N.W. Suite 404 Washington, DC   20008-2369 info@geneticalliance.org http://www.geneticalliance.org Tel: 202-966-5557 800 336-GENE (4363) Fax: 202-966-8553	National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291
Von Hippel Lindau Family Alliance 2001 Beacon Street Suite 208 Boston, MA   02135-7877 info@vhl.org http://www.vhl.org Tel: 617-277-5667 800-767-4VHL (4845) Fax: 858-712-8712	International RadioSurgery Association 3002 N. Second Street Harrisburg, PA   17110 office1@irsa.org http://www.irsa.org Tel: 717-260-9808 Fax: 717-260-9809