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Glossary
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| Sponsors and Collaborators: |
Forbes Norris MDA/ALS Research Center Muscular Dystrophy Association |
|---|---|
| Information provided by: | Forbes Norris MDA/ALS Research Center |
| ClinicalTrials.gov Identifier: | NCT00302198 |
Purpose
The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.
| Condition | Intervention |
|---|---|
|
Amyotrophic Lateral Sclerosis |
Behavioral: ALS Registry |
| Study Type: | Observational |
| Study Design: | Natural History, Longitudinal, Defined Population, Prospective Study |
| Official Title: | Amyotrophic Lateral Sclerosis Web Based Patient Care Database |
| Estimated Enrollment: | 15000 |
| Study Start Date: | January 2006 |
| Estimated Study Completion Date: | March 2006 |
Any person who has been diagnosed with ALS by a physician can enroll into this registry.
The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.
Eligibility| Genders Eligible for Study: | Both |
| Accepts Healthy Volunteers: | No |
Inclusion Criteria:
Contacts and Locations| Contact: Dina Scholtz, MD | 415-600-5764 | ScholtD@cpmcri.org |
| Contact: Giovanna Kushner | 415-600-3938 | kushneg@sutterhealth.org |
| United States, California | |
| Forbes Norris MDA/ALS Center | Recruiting |
| San Francisco, California, United States, 94115 | |
| Contact: Dina Scholtz, MD 415-600-5764 ScholtD@cpmcri.org | |
| Principal Investigator: | Robert G Miller, MD | California Pacific Medical Center |
More Information
| Study ID Numbers: | 23.112 |
| Study First Received: | March 10, 2006 |
| Last Updated: | March 10, 2006 |
| ClinicalTrials.gov Identifier: | NCT00302198 |
| Health Authority: | United States: Institutional Review Board |
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Amyotrophic Lateral Sclerosis |
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Amyotrophic lateral sclerosis Neuromuscular Diseases Spinal Cord Diseases Amyotrophic Lateral Sclerosis Central Nervous System Diseases Lou Gehrig's disease |
Sclerosis Degenerative motor system disease Neurodegenerative Diseases Motor neuron disease Motor Neuron Disease |
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Pathologic Processes Nervous System Diseases |
