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Second National Conference on Smith-Magenis SyndromeBridging Past and Future Horizons: Understanding the SMS PuzzleSeptember 2000An educational conference on Smith-Magenis Syndrome (SMS) was held on Sept 21-24, 2000 at the Key Bridge Marriott, Arlington, VA. The conference was co-sponsored by the National Human Genome Research Institute (NHGRI) and the National Institutes of Health (NIH) Office of Rare Diseases (ORD), in conjunction with the parents' support group Parents and Researchers Interested in Smith-Magenis Syndrome (PRISMS ). The conference series brought together parents, researchers and professionals caring for persons with SMS to exchange information, ideas, scientific data and family experiences. Attendees hear from medical experts, geneticists,and parents about the latest information on the medical, social, developmental and behavioral aspects of SMS, as well as current research efforts into the cause, management and effective treatment of SMS. The format of invited speakers and a series of smaller, more hands-on workshops is designed to maximize the exchange of information between parents and professionals from a variety of specialties. Additional information is available through PRISMS: SMS Research Roundtable: September 21, 2000 Contact: Last Reviewed: December 3, 2008 |
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