Fight SMA is an international nonprofit organization dedicated to finding a treatment or cure for spinal muscular atrophy (SMA), the leading inherited killer of children under two.
Anyone interested in learning more about spinal muscular atrophy should first visit the Fight SMA Spinal Muscular Atrophy Guidebook. It contains the most up-to-date information about SMA type 1, type 2, type 3, and type 4 / adult onset, written by one of the leading experts on the neuromuscular disease. The guidebook also provides information on diagnosis and tests and spinal muscular atrophy treatment, as well as help and support for spinal muscular atrophy parents.
We hope you find our website to be helpful, and will consider joining the fight. Please don't hesitate to contact us if you have any questions.
All the best,
Martha Slay
President, Fight SMA
FightSMA News and Events
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HR 2149, the SMA Treatment Acceleration Act, Introduced in House of Representatives
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FightSMA Rubber Duck Race - Buy your ducks online for FightSMA New Jersey's 3rd annual event!
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Connecticut Benefit for FightSMA - The cause is serious, but the evening will be fun!
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Joshua's Buddies 10th Annual 5K Run/Walk/Roll - Bring a buddy for a morning of exercise, fun and support!
April 27-28, 2009
Washington D.C.
"The Good Fight", the annual Fight SMA Spinal Muscular Atrophy Conference, was a big success! Read more about it on the Spinal Muscular Atrophy Blog, and be sure to check back here for information from the conference that can be used by those who couldn't attend!
The Fighter Mom Program
While fighting SMA is our primary mission, it isn't our only goal. Fight SMA is also a laboratory working to bring an end to all
childhood diseases and conditions. Through our FighterMom™ program, we give parents the tools to raise money, lobby
and in every way go on the offensive against their child's diagnosis. We welcome you to explore the FighterMom website, the FighterMom Blogs, the FighterMom Manual, and the other offerings of this unique program.
