The Friedreichs Ataxia Research Alliance (FARA) serves as a catalyst in public, private, scientific and patient-family communities, to build worldwide support and collaborations that drive medical research advances for Friedreichs ataxia. more
 

 

SCIENTIFIC NEWS

• Diagnosis and treatment of Friedreich ataxia: a European perspective.
• Bacterial frataxin CyaY is the gatekeeper of iron-sulfur cluster formation catalyzed by IscS.
• Peptide nucleic acid (PNA) binding and its effect on in vitro transcription in friedreich's ataxia triplet repeats.

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UPCOMING EVENTS

• May 15, 2009
  Van Schoick Benefit Bash and Golf Tournament - Athens, GA
  www.BenefitBash.org
  
• May 16, 2009
  Benefit Dance/ Irish Music - Norwood, MA bwmrowland@comcast.net
  
• May 17, 2009
  Race for the CureWalk/Run - Liberty Township, OH tammyluebbe@aol.com
  
• May 17, 2009
  Carolinas' WE Foundation Walk/ Run - Raleigh, North Carolina info@curefa.org
  
• May 19, 2009
  Heineken with a Heart
  Outback Happy Hour
  Atlanta, GA
  
• May 30, 2009
  Outback Luncheon
  Baton Rouge, LA
• June 6, 2009
  The 9th Annual Outback Steakhouse Charity Clay Classic
  Pintail Point Farms
  Queenstown, Maryland www.cbacharities.com/events.html
  

FARA NEWS

• April 13, 2009
  Mom tackles 200-mile bike trip for love
• April, 2009
  FARA Funded Researchers' Work Being Presented at the BSGT Meeting and Selected for "Best Presentation" Prize
• March 23, 2009
  Ride Ataxia
• March 12, 2009
  Cyclist with Rare Neuromuscular Disorder to Arrive in Seattle March 19 Completing 4 Day Cycling Journey
• March 3, 2009
  New Film, Directed by Mary Stuart Masterson, Features Kristen Stewart as a Young Woman with the Neuro-degenerative disease Friedreich's ataxia
• NEW CD RELEASE, 12/18/08: THE VOYCES ~ A NEW DAY NEVER FARAWAY : A special compilation of live and (mostly) previously unreleased songs - 100% of the proceeds go directly to The Friedreich's Ataxia Research Alliance (FARA)