1-800-448-4570
The BDSRA Purpose
- Maximize the opportunities of victims of Batten to lead as normal lives as possible.
- Provide a communication network, information and emotional support to families of persons with Batten Disease.
Finding Solutions
Shop at Krogers in Ohio and raise funds for Batten Disease Research
BDSRA is now participating in the Krogers Company Community Rewards Program. Register your Krogers Card here. The BDSRA Non-Profit Code is 83592.
Read Details and Instructions Here
BDSRA is now participating in the Krogers Company Community Rewards Program. Register your Krogers Card here. The BDSRA Non-Profit Code is 83592.
Read Details and Instructions Here
Developing Awareness
BDSRA 2009 Conference in St. Louis, MO
Annual Batten Disease Support and Research Association Conference is Thursday, July 16th thru Sunday, July 19th. Details in April's issue of The Illuminator.
Annual Batten Disease Support and Research Association Conference is Thursday, July 16th thru Sunday, July 19th. Details in April's issue of The Illuminator.
Family Stories
Taken out to the ball game: Local people in spotlight as Tribe faces Twins
Asher has Batten Disease, rapidly lost his sight and is dealing with cognitive decline because of the disease's progression. The brothers are from Berlin ... Read Story
Asher has Batten Disease, rapidly lost his sight and is dealing with cognitive decline because of the disease's progression. The brothers are from Berlin ... Read Story