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Public Use Data Sets

The Division of Cancer Control and Population Sciences (DCCPS) has the lead responsibility at NCI for supporting research in surveillance, epidemiology, health services, behavioral science, and cancer survivorship. The division also plays a central role within the federal government as a source of expertise and evidence on issues such as the quality of cancer care, the economic burden of cancer, geographic information systems, statistical methods, communication science, tobacco control, and the translation of research into practice. DCCPS staff members are innovators in creating resources for the public and the research community. Below are brief summaries and links to a number of public use data resources available through DCCPS and our partners.

Finding Cancer Statistics
Recently developed to facilitate the use of cancer data, Finding Cancer Statistics is a plain-language Web site that provides access to recent reports, datasets, and statistical tools for professionals and the general public. It includes definitions of commonly used statistics, descriptions of datasets and tools, and guides to their use.

Surveillance, Epidemiology, and End Results (SEER) Program

SEER Web site
The recently redesigned SEER Web site is the preferred mechanism for distributing most of the SEER Program's products. Recent additions to the site include the SEER 1975-2002 Cancer Statistics Review, with a search function.

SEER*Stat is a statistical system for the analysis of SEER and other population-based cancer databases. The system provides an easy-to-use Microsoft Windows desktop package for viewing individual cancer records and for producing statistics to assess the impact of cancer on populations.

The SEER*Prep system allows users to prepare and format their own cancer incidence, mortality, population, and expected survival rate data for use with SEER*Stat.

Fast Stats
Fast Stats uses the Cancer Query System 2.0, CanQues, as an interactive system with Java interface to allow users access to millions of precalculated cancer statistics.

Cancer Stat Fact Sheets
Cancer Stat Fact Sheets are a collection of statistical summaries for a number of common cancer types. They were developed to provide a quick overview of frequently requested cancer statistics.

National Health Interview Survey Cancer Control Topical Module
The National Health Interview Survey (NHIS) is an annual nationwide survey of 36,000 households conducted by the National Center for Health Statistics and administered by the U.S. Census Bureau.

California Health Interview Survey
The California Health Interview Survey (CHIS) provides population-based, standardized health-related data from 55,000 households selected from all 58 counties in California.

National Health and Nutrition Examination Survey
The National Health and Nutrition Examination Survey (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The survey is unique in that it combines interviews and physical examinations.

Tobacco Use Supplement to the Current Population Survey
The Tobacco Use Supplement to the Current Population Survey (TUS-CPS) is an NCI-sponsored survey of tobacco use that has been administered as part of the U.S. Census Bureau's Current Population Survey. The TUS-CPS is a key source of national and state level data on smoking and other tobacco use in the U.S. household population. These data can be used by researchers to monitor progress in the control of tobacco use, conduct tobacco-related research, and evaluate tobacco control programs.

Causes of Cancer
Cancer Genetics Network
The Cancer Genetics Network (CGN) is a resource for investigators conducting research on the genetic basis of human cancer susceptibility; integration of this information into medical practice; and behavioral, ethical, and public health issues associated with human genetics. The CGN can provide a wide variety of research services and specialized expertise to assist investigators with approved studies. Prospective investigators can freely query the CGN core database to learn more about the aggregate characteristics of participants and discover how the CGN may be used for research purposes.

Geographic Information System for Breast Cancer Studies on Long Island
The Epidemiology and Genetics Research Program has developed a Geographic Information System for Breast Cancer Studies on Long Island (LI GIS). The LI GIS provides researchers a unique tool with which to investigate potential relationships between environmental exposures and risk for breast cancer. It potentially can be used for research on other types of cancer and other diseases.

Cancer Family Registries (CFRs)
The Breast Cancer Family Registry (B-CFR) and Colon Cancer Family Registry (C-CFR) are international research infrastructures for investigators interested in conducting population and clinic-based interdisciplinary studies on the genetic and molecular epidemiology of breast and colon cancer and their behavioral implications. A central goal of the CFRs is the translation of this research to the clinical and prevention setting for the benefit of Registry participants and the general public. The CRFs have information and biospecimens contributed by families across the spectrum of risk for these cancers and from population-based or relative controls.

Quality of Care
SEER-Medicare Datasets
The SEER-Medicare datasets consist of linkages to the clinical data collected by the SEER registries about claims for health services collected by Medicare for its beneficiaries.

Breast Cancer Surveillance Consortium
The Breast Cancer Surveillance Consortium is a research resource for studies designed to assess the delivery and quality of breast cancer screening as well as the biology of breast cancer. The development of new collaborations to achieve these ends is a key goal of the BCSC. The BCSC data are available to outside investigators for research purposes and this site provides detailed information regarding the specific variables and how collaborations may be developed.

HMO Cancer Research Network (CRN)
The HMO Cancer Research Network (CRN) consists of the research programs, enrolled populations, and data systems of 12 health maintenance organizations nationwide. The overall goal of the CRN, and the NCI initiative under which it was funded, is to use this consortium of delivery systems to conduct research on cancer prevention, early detection, treatment, long-term care and surveillance. A portfolio of research studies encompasses cancer control topics ranging from modification of behavioral risk factors such as smoking to cancer care at the end of life.

Behavioral Research
Health Information National Trends Survey
The Health Information National Trends Survey (HINTS) is a nationally representative, biennial telephone survey of 8,000 randomly selected adults. NCI and extramural communication researchers are analyzing data to gain insight into people's knowledge about cancer, the communication channels through which they obtain health information, and their cancer-related behaviors.

Cancer Survivor Prevalence Data
To better understand the demographics of the U.S. population of cancer survivors, Office of Cancer Survivorship (OCS) and the Surveillance Research Program worked together to develop survivorship prevalence estimates based on the Surveillance, Epidemiology, and End Results (SEER) registry database, which represents five states (Connecticut, Hawaii, Iowa, New Mexico, and Utah), and four standard metropolitan statistical areas (Detroit, Atlanta, San Francisco-Oakland, and Seattle-Puget Sound).

Dissemination and Diffusion
Cancer Control P.L.A.N.E.T.
Cancer Control P.L.A.N.E.T. (Plan, Link, Act, Network with Evidence-Based Tools) is a Web portal that provides easy access to data and research-based resources that can help state and local cancer control program planners and staff, and cancer prevention and control researchers to design, implement, and evaluate evidence-based cancer control programs.

Cancer TRENDS Progress Report
The Cancer Trends Progress Report 2007 Update summarizes our nation's progress against cancer in relation to Healthy People 2010 targets set forth by the Department of Health and Human Services. The report includes key measures of progress along the cancer control continuum and uses national trend data to illustrate where advancements have been made.

Last Updated: November 14, 2008


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