The Wilson Disease Association is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Wilson disease.
Our website is designed to give patients, family members, and healthcare professionals the most up-to-date information on treatment, legislation, support groups, research, fundraising, and patient stories. The WDA does not accept advertising for this website.
This website is not intended to provide advice on personal medical matters or to substitute for consultation with a physician.
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The Many Faces of Wilson Disease
The WDA has been contacted by a young lady who is wanting to help raise funds for the WDA. She is a photographer and together we developed the idea of using her photos and have them printed into notecards that we will then offer for sale on the WDA website. We are calling the project "The Many Faces of WD". We would like to gather different adjectives that describe Wilson disease and she will attempt to portray them in her photographs. If you would like to participate, think about one word (such as sad, happy, etc) that comes to your mind when you think about Wilson disease, and a brief sentence about why. Please send these to mary.graper@wilsonsdisease.org as soon as possible.
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New WDA Patient Education Publication Available
Wilson Disease: Maintaining a Successful Treatment Plan
Published in March, 2008, this 8 1/2" x 11", 32 page publication includes the topics: Medical Care, Medications, Diet and Nutrition, Special Circumstances, and Family Concerns and Genetics. Also included is a glossary of medical terms, a glossary of genetic terms, and a printed copy of the "Wilson Disease Patient Lab Tracker". If you would like a copy, please contact the WDA office at: wda@sssnet.com or 888-264-1450
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Now available - The new WDA Winter/Spring Newsletter
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