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| Topic: |
Hematologic Diseases (HE) |
| Title: |
Talking to a Child with Bone Marrow Disease. |
| Author: |
n/a |
| Source: |
Annapolis, MD: Aplastic Anemia and MDS International Foundation, Inc. 2004. 29 p. |
| Availability: |
Available from Aplastic Anemia and MDS International Foundation, Inc. PO Box 613, Annapolis, MD 21404. Phone: 1-800-747-2820. Email: help@aamds.org. Website: www.aamds.org. Price: Single copy free, $5.00 for each additional copy. |
| Abstract: |
This booklet was created to be read aloud by a parent, caregiver, or health care professional to a child patient of any age. It was written to encourage children with bone marrow diseases to ask questions and express their feelings. Each page of text and illustration are designed to identify different topics, including emotions, the importance of talking with others about one’s feelings, different ways to express feelings, the role of the bone marrow in making blood cells, hospital care and the people who work there, taking medicine, family dynamics, recreational activities, talking with friends and classmates about the illness, and coping with being ill. Each page includes questions designed to draw the child into conversation, to illuminate hidden fears and misconceptions that can be clarified. The booklet is illustrated with full-color line drawings of children in a variety of health care and home settings. The booklet concludes with a few pages of blank lines for readers to write out their thoughts. The back cover of the booklet describes the goals and activities of the Aplastic Anemia and MDS International Foundation, an organization that fights bone marrow diseases through patient support and research. |
| Format: |
Monograph/Book |
| Language: |
English. |
| Major Keywords: |
Hematologic Diseases. Bone Marrow Diseases. Children. Patient Education. Emotions. Coping. Psychosocial Factors. |
| Minor Keywords: |
Family. Hospital Care. Patient Care Team. Physiology. Fear and Anxiety. Parent Education. Voluntary Organizations. |
| Publication Number: |
HEBK10001. |
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