Notice: CETT Program Update
This notice is to inform the research community of a pilot resource program established by the NIH ORD, the Collaboration, Education, and Genetic Test Translation (CETT) Program. The program was created to facilitate the translation of genetic tests from the research setting to Clinical Laboratory Improvement Amendments (CLIA)-certified laboratories. The CETT Program promotes genetic test translation through collaborations among clinicians, laboratories, researchers, and disease-specific advocacy group.
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NIH Announces Undiagnosed Diseases Program
The National Institutes of Health (NIH) Undiagnosed Diseases Program was developed to to provide answers to patients with mysterious conditions that have long eluded diagnosis and to advance medical knowledge about rare and common diseases.
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Social Security Announces Nationwide Launch of Compassionate Allowances
Michael J. Astrue, Commissioner of Social Security, today announced the national rollout of the agency’s Compassionate Allowances initiative, a way to expedite the processing of disability claims for applicants whose medical conditions are so severe that their conditions obviously meet Social Security’s standards.
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Request for Information (RFI) on Target Nominations for Monoclonal Antibodies Useful for Basic and Clinical Research of Rare Diseases
The Office of Rare Diseases is collaborating with the NIH-funded NeuroMab Facility to provide investigators with an opportunity to have monoclonal antibodies made against targets/proteins involved in rare diseases.
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Focus on Rare Diseases, December 2008
A newsletter produced by the Office of Rare Diseases that highlights the office's research activities.
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NIH releases first Biennial Report of the Director
Dr. Raynard S. Kington, acting director of the National Institutes of Health (NIH), today announced the publication of the first Biennial Report of the Director, a document that provides an integrated portrait of NIH research activities. The report makes it easier for Congress, advocates and patient groups, and the general public to understand the many programs within the agency. The report contains an assessment of the state of biomedical and behavioral research organized by disease category, investigative approach, or resource. To ensure that the document reflects the work of all 27 Institutes and Centers (ICs), 15 trans-NIH teams gathered, reviewed, and organized information into a standardized format.
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The Annual Biospecimen Research Network Symposium
Every year the Biospecimen Research Network (BRN) will sponsor a research symposium to highlight the significant impact of pre-analytical biospecimen variables on cancer research and molecular medicine. Archived symposium materials can be found through this website, as well as information about future meetings.
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