Diamond Blackfan Anemia / Inherited Bone Marrow Failure Syndromes Research Study
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Daclizumab for Diamond Blackfan Anemia
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If you or someone you know has been diagnosed with Diamond Blackfan Anemia, you may be able to participate in a clinical trial evaluating a new immunosuppressive therapy. Hematologists are evaluating whether daclizumab, a genetically engineered human monoclonal antibody, can increase blood counts, reduce anemia symptoms, and/or reduce dependence on immunosuppressive medications and transfusions.
To find out if you qualify, please contact our research coordinator at (301) 594-4180 or email us at BloodStudy@nhlbi.nih.gov
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Disease and Treatment Information |
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Diamond Blackfan Anemia / Inherited Bone Marrow Failure Syndromes Research Study
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Rituximab (Rituxan) for Diamond-Blackfan Anemia
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If you or your child has been diagnosed with Diamond Blackfan Anemia, you (your child) may be able to participate in a clinical trial evaluating a new immunosuppressive therapy. Hematologists are evaluating whether rituximab (Rituxan), a genetically engineered humanized monoclonal antibody therapy, may increase in the production of red blood cells by the bone marrow and thus a decrease in the number of transfusions needed to prevent symptoms of anemia.
To find out if you qualify, please contact our research coordinator at (301) 594-4180 or email us at BloodStudy@nhlbi.nih.gov
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Protocol Information |
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Disease and Treatment Information |
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Diamond Blackfan Anemia / Inherited Bone Marrow Failure Syndromes Research Study
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Stem Cell Transplant for Diamond Blackfan Anemia
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If you (or someone you know) is between the ages of 16-65 years and have been diagnosed with Diamond Blackfan anemia, you may be eligible for a stem cell transplantation procedure at the Clinical Center of the National Institutes of Health (NIH). Under evaluation is the use of low-dose radiation and novel methods of transplant preparation and post transplant therapy to reduce the risk of graft-versus-host disease.
You must have an HLA-matched family member to participate. We will do the blood testing free of charge to see if your family member is a match. We pay for all medical costs related to the transplant procedure. You must be available to live near NIH for approximately four months. We also provide a small daily allowance to help with living expenses while you are on the study and living away from home.
For more information please contact our research coordinator at (301) 402-3087, or email us at BloodStudy@nhlbi.nih.gov
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Disease and Treatment Information |
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Support Groups |
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Department of Health
and Human Services
National
Institutes of Health
National Heart, Lung, and Blood
Institute