A Parent's Guide to Hearing Loss

Produced by U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, Early Hearing Detection and Intervention Program

PRINT THIS PAGE

Family Support

Alexander Graham Bell Association for the Deaf & Hard of Hearing
www.agbell.org

International nonprofit membership organization, support network, and resource center on pediatric hearing loss and spoken language approaches and related issues.

Address: 3417 Volta Place, NW, Washington, DC 20007
(202) 337-5220 — (Voice)
(202) 337-5221 — (TTY)
(202) 337-8314 — (Fax)

American Society for Deaf Children (ASDC)
www.deafchildren.org

A national organization of families and professionals that helps create opportunities for children who are deaf and hard of hearing to gain full communication access, particularly through the use of sign language.

Address: 3820 Hartzdale Drive, Camp Hill, PA 17011
E-mail: asdc@deafchildren.org
(800) 942-2732 — (Voice Hotline, Toll-free)
1-866-895-4206 — (Voice)
(717) 703-0073 — (Voice)
(717) 909-5599 — (Fax)

Beginnings For Parents of Children Who Are Deaf or Hard of Hearing, Inc.
www.beginningssvcs.com

Provides emotional support and access to information as a central resource for families with children who are deaf or hard of hearing, age birth through 21 years of age.

Address: P.O. Box 17646, Raleigh, NC 27619
(800) 541-HEAR — (Toll-free for NC only, Voice, TTY)
(919) 850-2746 — (Voice, TTY)

Boys Town National Research Hospital
www.boystownhospital.org/Hearing/index.asp
www.babyhearing.org/Parent2Parent/index.asp

Provides parents with a variety of helpful information related to hearing loss in children and information about how some parents have responded to their child's hearing loss and how they have learned to better cope with it.

Address: 555 N 30th St., Omaha, NE 68131
(402) 452-5000 — (Voice)
(800) 448-3000 — (Voice, Toll-free, 24 hours a day)
(800) 448-1833 — (TTY, Toll-free, 24 hours a day)

Family Voices
www.familyvoices.org

A national, grassroots organization that is a clearinghouse for information and education concerning the health care of children with special health needs.

Address: 2340 Alamo SE, Ste. 102, Albuquerque, NM 87106
E-mail: kidshealth@familyvoices.org
(505) 872-4774 — (Voice)
(888) 835-5669 — (Voice, Toll-free)
(505) 872-4780 — (Fax)

Hands & Voices
www.handsandvoices.org

Nonprofit, parent driven organization that provides support to families with children who are deaf or hard of hearing.

Families For Hands & Voices
Address: PO Box 3093, Boulder, CO 80307
E-mail: parentadvocate@handsandvoices.org
(217) 357-3647 — (Voice)
(866) 422-0422 — (Voice, Toll-free)

Listen-Up Web!
www.listen-up.org/

Provides resources and information geared to the special needs of children who are deaf and hard of hearing, and their families.

E-mail: kay@listen-up.org

National Dissemination Center Information Center for Children & Youth with Disabilities (NICHCY)
www.nichcy.org

National information and referral center that provides information on disabilities and related issues, with a focus on children from birth through 22 years of age.

Address: P.O. Box 1492, Washington, DC 20013
E-mail: nichcy@aed.org
(800) 695-0285 — (Voice, TTY, Toll-free)
(202) 884-8200 — (Voice local number)
(202) 884-8441 — (Fax)

For more information or to order additional copies of "A Parent's Guide to Hearing Loss" visit CDC's website at www.cdc.gov/ncbddd/ehdi.