Welcome to KS&A


KS&A’s mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives


2009 "I Love LA" Families’ Conference

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July 24, 25 & 26, 2009
Mount St. Mary’s College - Chalon Campus in Brentwood Hills, CA

This is a landmark event. For the first time, AAKSIS, the XXYY Project and KS&A will work together to put on a joint conference!
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To a growing number of people, the letters “KS&A” stand for Knowledge Support & Action.  KS&A is the nation’s oldest and largest non-profit organization serving individuals and families affected by an uncommon number of X and/or Y chromosomes, including 47,XXY, Klinefelter syndrome, Trisomy X, 47,XYY, mosaicism and other associated conditions.

KS&A received its start on April 12, 1989, when nationally syndicated columnist Ann Landers published a letter written by the concerned mother of a then 8-year old 47,XXY son.

Within weeks, more than a thousand letters poured in from individuals all over the country who were affected by these conditions and other parents who expressed similar concerns with the lack of timely diagnosis, inaccurate information and poor support services for affected persons.  KS&A was formed shortly thereafter, and has operated continuously ever since.

What began as an effort by one concerned individual to locate information and support, has grown into an international support organization that today responds to calls and inquiries from persons who are just learning of the diagnosis, sponsors conferences and other events that are directed to the needs and interests of the individuals affected by these conditions, their families, and the clinicians, educators and researchers who serve them, and much more…. 

How can we assist you? 

We are as close as your telephone and offer support through a network of volunteers for each of the conditions we serve.  You may access this network by calling KS&A on our toll-free number from anywhere in the U.S. or Canada, (888) 999-9428, or from outside the U.S. at (949) 858-8384. 

Bookmark this page so that you can return here to read the latest announcements such as upcoming conferences and special offers, which are updated often. 

Although this site contains well over 200 pages of high quality content, it remains a work-in-process. We’d love to have your assistance in improving the content on this site, so please let us know if you’d care to Volunteer Your Time or to Make a Contribution that will assist us to complete these sections even more quickly so that others will benefit.

Special Interest


Chicago Support Group for Trisomy X

The First meeting of the Chicago Trisomy X Support group will take place on June 6, 2009. Meeting Announcement and RSVP Form

Subscribe to a Discussion Group

Tap into a network of hundreds of real people dealing with the same issues as you.  KS&A offers seven free discussion lists that give you an opportunity to ask questions, exchange ideas, information, news, comments or whatever related to X and/or Y chromosome variations.  Learn more about these free lists and enroll today…

Condition-Specific Information

KS&A offers services and support for each of the following conditions. To learn more, click on the condition that interests you.
Patricia Jacobs Lifetime Achievement Award

Join KS&A's Mailing List

  


Take Our Poll - Get Instant Results

Are you looking for information on Klinefelter Syndrome or other X and/or Y chromosome conditions?  Click here to take our poll.


Self-Assessment Tools

Begin to take control of your health with EBSCO Publishing’s proprietary interactive healthy-living calculators and health risk assessors.


MISSING! Jason Holley: 22 year old XXY male

At Risk: Missing since Jan. 5, 2009 from Colorado Springs
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Visit www.findjasonholley.com for the latest updates and information on how you can help find Jason. KS&A Press Release


KS&A, 11 Keats Court, Coto de Caza, CA 92679
Call Toll-Free: (888) 999-9428 x41 • Outside USA & Canada: (949) 858-9428 x41