| The
meeting will include presentations
and continued discussions on the ACHDNC
nomination/evaluation/decision processes
for newborn screening candidate conditions
for inclusion on the ACHDNC uniform
newborn screening panel. The
evidence review for Severe Combined
Immunodeficiency will be presented.
Participation Instructions:
- The public can join the meeting
via webcast by logging onto http://altarum.na3.acrobat.com/achdnc/;
next select "enter as a guest,"
type in your full name, and click
"enter room."
- For audio, call the toll
free number 1-877-705-6006. When
prompted, say the password
– HRSA Genetics. Participants
should call no later than 12:50
p.m. EST in order for the logistics
to be established.
Meeting Registration:
General public participants also
are asked to register for the
webcast by going to the registration
website at http://events.SignUp4.com/ACHDNC1124.
The registration deadline is Friday,
November 21, 2008. If
there are technical problems gaining
access to the website, please
contact Brigitte Abu-Hamed, Meetings
Coordinator, Conference and
Meetings Management, Altarum
Institute, telephone (202) 828-5100,
or e-mail Brigitte.AbuHamed@altarum.org.
Meeting documents:
Materials for the meeting will
be posted on the website, http://events.SignUp4.com/ACHDNC1124.
Special Accommodations:
Attendees requiring special needs
such as large print materials or
additional special needs may make
comments when registering at the
online website. Or you may wish
to contact Tamar R. Shealy, Senior
Meetings Manager, Conference and
Meetings Management, Altarum
Institute; telephone (202) 828-5100,
or e-mail Tamar.Shealy@altarum.org.
Public Comments:
Members of the public can present
oral comments during the public
comment period of the webcast. Those
individuals are required to register
online by Friday, November
21, 2008 at http://events.SignUp4.com/ACHDNC1124.
Groups having similar interests
are requested to combine their comments
and present them through a single
representative.
Requests should contain the name,
address, telephone number, and any
professional or business affiliation
of the person desiring to make an
oral presentation. The written comments
will be distributed to Committee
members prior to the conference
call. Parties wishing to submit
written comments must ensure that
the comments are postmarked, faxed
or emailed no later than Friday,
November 21, 2008, for
consideration. Submit the written
comments to: Tamar R. Shealy,
Senior Meetings Manager, Conference and
Meetings Management, Altarum
Institute, 1200 18th Street, N.W.,
Suite 700, Washington, DC 20036;
telephone (202) 828-5100, fax (202)
785-3083, or e-mail Tamar.Shealy@altarum.org.
Each public commentator will be
notified by email of their assigned
presentation time. The allocation
of time may be adjusted to accommodate
the level of expressed interest.
FOR FURTHER INFORMATION
CONTACT:
Anyone requiring information regarding
the ACHDNC should contact: Jill
F. Shuger, M.S., Genetic Services
Branch, Maternal and Child Health
Bureau, HRSA, Parklawn Building,
Room 18A-19, 5600 Fishers Lane,
Rockville, Maryland 20857; telephone
(301) 443–1080, or e-mail
jshuger@hrsa.gov.
Michele Lloyd-Puryear, MD, PhD
Executive Secretary
ACHDNC
_______________________________
Michele A. Lloyd-Puryear, M.D.,
Ph.D.
Chief, Genetic Services Branch
Division of Services for Children
with Special Health Needs
Maternal and Child Health Bureau
5600 Fishers Lane. Room 18-A-19
Rockville, MD 20857
Phone (301) 443-1080
Fax (301) 443-8604
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