[NIFL-HEALTH:4129] Looking for volunteer CD reviewers

From: Martha Burton Santibáñez (mburton@nmdp.org)
Date: Thu Sep 18 2003 - 14:41:02 EDT


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From: Martha Burton Santibáñez <mburton@nmdp.org>
To: Multiple recipients of list <nifl-health@literacy.nifl.gov>
Subject: [NIFL-HEALTH:4129] Looking for volunteer CD reviewers
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Hello everyone!

I have (yet another) request of fellow listserv members...  My colleagues and
I developed a bilingual (English/Spanish) audio CD this year, that provides
basic information about unrelated blood stem cell transplants for patients who
are considering the procedure(s) as a treatment option.

We intended the CD to be a useful resource for patients and family members
who:
- Have limited literacy
- Prefer to learn by listening
- Speak Spanish as a preferred language, or
- Are English language-learners

We printed and distributed 2,000 CDs as a pilot project.  We've already sent
out evaluations to staff at transplant centers and migrant health clinics
throughout the country and feedback has been very positive.  We would like to
add another dimension to our evaluation process, by having it reviewed from a
health literacy/accessible language perspective.  Our hope is to refine the
product before we print more, or add more languages.

Each language is about 15-20 minutes long and is accompanied by a pull-out
insert.  If you are interested in having a listen about a medical treatment
that is probably unfamiliar to you, please call (612) 617-8336 or email me
privately and I'll happily send you a packet to review.  Unfortunately, I have
a limited number of CDs left, so it will be on a first-come, first-served
basis.

Many thanks,

Martha Burton Santibanez
Outreach Specialist, National Marrow Donor Program
(612) 617-8336
mburton@nmdp.org



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