Return-Path: <nifl-health@literacy.nifl.gov> Received: from literacy (localhost [127.0.0.1]) by literacy.nifl.gov (8.10.2/8.10.2) with SMTP id h6IDeD714221; Fri, 18 Jul 2003 09:40:13 -0400 (EDT) Date: Fri, 18 Jul 2003 09:40:13 -0400 (EDT) Message-Id: <410-220037518135227750@earthlink.net> Errors-To: listowner@literacy.nifl.gov Reply-To: nifl-health@literacy.nifl.gov Originator: nifl-health@literacy.nifl.gov Sender: nifl-health@literacy.nifl.gov Precedence: bulk From: "Debbie Yoho" <dwyoho@earthlink.net> To: Multiple recipients of list <nifl-health@literacy.nifl.gov> Subject: [NIFL-HEALTH:4050] Websites re: health X-Listprocessor-Version: 6.0c -- ListProcessor by Anastasios Kotsikonas Content-type: text/plain; charset=US-ASCII X-Mailer: EarthLink MailBox 2003.2.92.0 (Windows) Status: O Content-Length: 46778 Lines: 1109 Although this is a long post, I felt it worth sending to the list anyway. What follows is a categorized listing of websites connecting you to the latest journal articles on a variety of health topics. Scroll down to locate an entire section on health communications. The list was compiled by Marcia Zorn, National Library of Medicine. Best to all, Debbie Yoho, moderator SENT JULY 17, 2003 A new Pew Internet & American Life Project report on the scope of health topics Americans are searching online Internet Health Resources: Health searches & email are more commonplace, but there is room for improvement in searches & overall Internet access. >From Susannah Fox (Dir of Research): “In the first comprehensive national survey on the scope of health topics that Americans are searching online, the Pew Internet & American Life Project finds that one in five Internet users has looked for mental health information, one in four has looked for health insurance information, and one in three has looked for drug information online. In all, 80% of Internet users have looked for at least one of 16 health topics. This study was conducted via random digit dial telephone polling in Dec 2002, & also draws on comments gathered from 1,971 Internet users who participated in an online survey. “ Page with links to full rept, summary, etc http://www.pewinternet.org/reports/toc.asp?Report=95 Full rept http://www.pewinternet.org/reports/pdfs/PIP_Health_Report_July_2003.pdf Summary http://www.pewinternet.org/reports/reports.asp?Report=95&Section=ReportLevel 1&Field=Level1ID&ID=403 Questionaire http://www.pewinternet.org/reports/pdfs/PIP_Health_Topline_2003.pdf AGED / AGING The Greying of Society in the Age of Connectivity http://www.developmentgateway.org/node/133831/sdm/docview?docid=544884 Getting older? Be cautious with medication in 16 languages (only last paragraph specific to Australia.) http://www.mhcs.health.nsw.gov.au/health-public-affairs/mhcs/publications/49 80.html BIOETHICS / ETHICS “Primer on Ethics & Human Cloning http://www.actionbioscience.org/biotech/mcgee.html Medical Ethics (Medicine Online from The Int J of Medicine. Jul 2001) http://www.priory.com/ethics.htm CANCER 2003 Global Action Against Cancer Facts&Figures; causes, prevention, detection, etc. Booklet at: http://www.uicc.org/news/global-action.pdf Other International Union Agst Cancer links http://www.uicc.org/ Conference Sep 15-18, 2003: Comprehensive Approaches to Cancer Control: The Public Health Role, CDC 2003 Cancer Conf, Atlanta 1,000+ participants http://www.cancerconference.net/Attendees/regist.aspx Registration before July 21, 2003 is $200, $275 after Ca Facts & Figures for African Americans 2003-4 (ACS) http://www.cancer.org/downloads/STT/861403.pdf BreastCancerSource.com for breast ca tx options http://hcp.breastcancersource.com/Article/10418.aspx CLINICAL COMM The Evolution of the Patient-Physician Relationship in the United States: Emancipation, Empowerment, and Engagement http://www.positiveprofiles.com/about_us/evolution.htm Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents BMJ 2003; 326: 305 http://bmj.com/cgi/content/full/326/7384/305 CLINICAL TRIALS Exploring Challenges, Progress, & New Models for Engaging the Public in the Clinical Research Enterprise: Clinical Research Roundtable Workshop Summary (2003) http://www.nap.edu/books/0309089468/html/ COMMUNICATION COMPETENCE NCA’s Criteria for the Assessment of Oral Communication http://isis2.admin.usf.edu/UGRADS/AdviseaBull/assessing_oral_communication_c om.htm The important new NAS book entitled Health Professions Education: A Bridge to Quality (2003) has 10 chapters that that “hit” on communication, including chapters about the Core Competencies needed for health care professionals http://books.nap.edu/nap-cgi/chaphits.cgi?term=communication&isbn=0309087236 &submit.x=13&submit.y=7 Communication Initiative “window” for Health Comm- http://www.comminit.com/healthcomm/ Supportive Communication U.S. Pharmacist (Mar 2000) http://www.uspharmacist.com/oldformat.asp?url=newlook/files/phar/mar00commun ications.htm Persuasive Communication (US Pharmacist April 2000) http://www.uspharmacist.com/oldformat.asp?url=newlook/files/phar/apr00rel.ht m Immediacy: Part 1—Verbal Immediacy (U.S. Pharmacist) http://www.uspharmacist.com/oldformat.asp?url=newlook/files/phar/jul00rel.ht m COMPLIANCE / ADHERENCE Adherence to Long-Term Therapies: Evidence for Action (WHO, Jan 2003) ”…the consequences of poor adherence for health & economics…options …potential impact …” Chaps at: http://www.who.int/chronic_coCOMMUJNnditions/adherencereport/en/. Full rept (211p) pdf http://www.who.int/chronic_conditions/adherence_report.pdf DISABILITY / ASSESSIBILITY "Authoring for Accessibility with Adobe PDF Documents" & "Accessibility and Usability with Macromedia Flash" http://www.htctu.fhda.edu/publicat/publicatmain.htm ICTs & people with disabilities UNESCO meeting http://portal.unesco.org/ci/ev.php?URL_ID=11014&URL_DO=DO_TOPIC&URL_SECTION= 201 The CPB/WGBH National Ctr for Accessible Media (NCAM) and Ohio State U developed Cornerstones, an approach to literacy development for children who are deaf and hard of hearing. Cornerstones teaching units at http://pbskids.org/lions/cornerstones Reading & Deaf Children article at http://www.readingonline.org/articles/art_index.asp?HREF=/articles/loeterman /index.html “Life Behind the Label” guidance to writers re: language when writing about mental or physical disabilities. http://www.poynter.org/content/content_view.asp?id=36851 Disability on the Net, AJC V3#3 http://acjournal.org/holdings/vol3/Iss3/rogue4/scoopman.html Does someone you know need a speech pathologist? http://www.mhcs.health.nsw.gov.au/health-public-affairs/mhcs/publications/49 65.html in 13 languages DIVERSITY / CROSS-CULTURAL / CULTURAL COMPETENCE / MULTICULTURAL / ETHNICITY BMJ Editorial: Racial/ethnic disparities in medical care bmj.com, 3 Jul 2003; html http://bmj.com/cgi/content/full/bmjusa.03060002v1 pdf http://bmj.com/cgi/reprint/bmjusa.03060002v1.pdf Resources in Cultural Competency (includes links & bibliographies) fm Neiswanger Inst. http://www.meddean.luc.edu/ssom/depts/bioethics/resources/cultural/index.htm Includes links to Professional Agencies with Established Standards and Initiatives Promoting Cultural Competence, Noteworthy Links, a Selected Bibliographis for Cross-Cultural Health Care, Cross-Cultural Ethics, and Training in Cross-Cultural Health Care Delivery National Council on Interpreting in Health Care list of local and regional interpreter associations around the country that focus on health care interpreting http://www.ncihc.org/hciaus.htm Hispanic Patients' Double Burden: Lack of Health Insurance & Limited English. Commonwealth Fund (Fe 2003) http://www.cmwf.org/programs/insurance/doty_hispanicdoubleburden_592.pdf Hispanic Population Reaches All-Time High of 38.8 Million, New Census Bureau Estimates Show (6/18/03) http://www.census.gov/Press-Release/www/2003/cb03-100.html See also http://www.census.gov/pubinfo/www/multimedia/LULAC.html Does One Size fit all? Exploring Asynchronous Learning in a Multicultural Environment JALN 7(1) Fe 2003 http://www.aln.org/publications/jaln/v7n1/pdf/v7n1_morse.pdf http://www.aln.org/publications/jaln/v7n1/v7n1_morse.asp US Latino Websites: Diversity & Ethnic Studies http://www.public.iastate.edu/%7Esavega/us_latin.htm Reznet U.S. online newspaper from Native Am Journalists Association (NAJA) http://www.reznetnews.org/about/ http://www.comminit.com/pdskdv72002/sld-5186.html OJJDP Tribal Youth Program:The US DOJ, Office of Juvenile Justice & Delinquency Prev (OJJDP) information/resources for assisting tribal youth. The OJDDP Bulletin describes initiatives: www.ncjrs.org/html/ojjdp/193763/contents.html This is an amazing resource for multicultural groups! http://www.mhcs.health.nsw.gov.au/health-public-affairs/mhcs/ Healthy Roads.org is a MULTIMEDIA, multicultural Web site with remarkable links http://www.healthyroadsmedia.org/ Multilingual-Health-Educationnet http://www.multilingual-health-education.net/faq.asp Information in English ; French ; Farsi ; Hindi ; Punjabi ; Korean ; Spanish ; Chinese ; Japanese ; Vietnamese ; Darshan ; Italian Conexión Migrante Health and Education Services site links to agencies offering educational, health, & other supportive services to seasonal & migrant farmworkers http://www.stcc.cc.tx.us/Library/guides/migrante.htm E-HEALTH / TELEMEDICINE / INFORMATICS Working Session on Health Information and Virtual Media Congress CRICS VI - BIREME May 8, 2003 (33p) http://www.paho.org/English/DD/IKM/rippen-mexico.pdf Quality of Health Information on the Internet: Achievements, Lessons & the Future presentation CRICS VI - BIREME May 8, 2003 http://www.paho.org/English/DD/IKM/risk.pdf Infodemiology – The Epidemiology of (Mis) Information http://www.paho.org/English/DD/IKM/gunther.pdf Promoting Prevention Through Information Tech. Assessment of Information Tech in ACHP Plans. (23p Alliance of Community Health Plans Feb 2003) http://www.achp.org/cdc/it.pdf “Bridging the Digital Divide: Informatics & Vulnerable Populations,” 2003 Am Medical Informatics Assn (AMIA) Spring Congress May 28-30 has links to recommended reading, slide presentations & workgroup sessions under "Spring Congress Schedule" section http://www.amia.org/meetings/spring/current/info.html Challenges in e-health Service Delivery: 2d Health Online Summit 3/03/03 http://www.health.gov.au/healthonline/docs/summit2/brommeyer.pdf E-Health: Empowering Clinicians & Consumers (Slides) http://www.himss.org/content/files/proceedings/2001/roundtab/rhouts/rslho08. pdf Informatics Worldwide “The First and Most Comprehensive Health Informatics Index Site” http://www.hiww.org/index.html E-LEARNING / ED TECH / DIGITAL & DISTANCE LEARNING Is “As Good as Face-to-Face” As Good As it Gets? (2003) JALN V6# 2 Aug 2002 http://www.aln.org/publications/jaln/v6n2/pdf/v6n2_macdonald.pdf http://www.aln.org/publications/jaln/v6n2/v6n2_macdonald.asp Web Center Learning Networks Effectiveness Research Learning Networks Effectiveness R Asynchronous Learning Networks (ALN) & to build & strengthen the ALN evaluation research community, to create & share improved research methods, theoretical frameworks, & instrumentation for assessing the outcomes of online learning. http://www.alnresearch.org/index.jsp It has an amazing data base of links to papers about CMC effectiveness, asynchronous ed, etc http://www.alnresearch.org/JSP/papers_frame_1.jsp Measuring Learning effectiveness Web Tutorial http://www.alnresearch.org/JSP/tutorial_frame.jsp Links to e-articles http://www.aln.org/publications/view/index.asp Tutorial Learning for the New Century re: learning paradigms past & present Journal of Science Education & Tech V10#1 Mar 2001 http://www.ics.uci.edu/~bork/tutorial_learning.pdf Links to blogs re: online learning http://www.aln.org/resources/index.asp E-JOURNALS / E-NEWSLETTERS (only free ones) Journal of Asynchronous Learning Networks http://www.aln.org/publications/jaln/index.asp (“a resource for knowledge about online learning” Sloan-C View (online learning) http://www.aln.org/publications/view/index.asp World Health News Online, an online digest http://www.worldhealthnews.harvard.edu/index.html About it: http://www.worldhealthnews.harvard.edu/about/index.html The Evaluation Exchange is a periodical from the Harvard Family Research Project that addresses current issues facing program evaluators of all levels, with articles written by the most prominent evaluators in the field…etc http://www.gse.harvard.edu/hfrp/eval.html Directory of Open Access Journals (DOAJ, http://www.doaj.org) Lund Univ Libraries, supported by the Information Program of the Open Society Institute (http://www.osi.hu/infoprogram/ & SPARC http://www.arl.org/sparc). Describes about 350 open access journals EMPOWERMENT / INFORMED PATIENT / PT/CONSUMER-CENTERED / PROBLEM-SOLVING Health InSight: Taking Charge of Health Information (Harvard Sch Pub Health Ctr for Risk Analysis proj) http://www.health-insight.com/ie/index.html Do Patients need to read research? http://bmj.com/cgi/reprint/326/7402/1307.pdf Informed patient consent: a historical perspective Radiol Technol 1995 Nov-Dec 67(2):119-24 reviews the concept of informed patient consent http://www.dc.peachnet.edu/~shale/humanities/composition/assignments/experim ent/dowdabs.html Has the Web Really Empowered Today's Health Consumers? (Acrobat PDF) AMA's Marketing Health Services - Fall http://www.pathinstitute.com/Articles/Empowerment%20Article.pdf “The Synapse Between Silos” compares a healthcare system to dendrites in the human nervous sys. These “nerve ctrs” are often called "silos" in business slang. http://www.ihi.org/pursuingperfection/projectparticipants/whatcom/story1.asp See also http://www.amanet.org/editorial/silos_advice.htm Evidence-based Decision Making (fm UK’s Nat’l Electronic Library for Health) http://www.nelh.nhs.uk/ebdm/ Informed consumer gets the best health care http://www.idiotsguides.com/Chapters/0028621654_CIG_Managed_Health_Care/file .htm Telemedicine: New Horizons for the Informed Patient (Lifeline to Better Care Conf presentation) http://www.cisco.com/warp/public/3/emea/ent/industry/lifeline/presentations/ john_parker.pdf EVALUATION / OUTCOMES ASSESSMENT Scientifically Based Research Special Report of expert commentary re: challenges & opportunities of the current federal policy’s emphasis on sci-based research for the practice & evaluation of education reform Evaluation Exchange v9#2 Summer 2003 http://www.gse.harvard.edu/hfrp/eval/issue22/special.html Designing Evaluations to Match Program Development (Evaluation Exchange v9#2 Summer 2003 http://www.gse.harvard.edu/hfrp/eval/issue22/eval2.html Flexibility & Feedback in a Formative Evaluation Importance of flexibility & feedback in conducting formative evaluation. http://www.gse.harvard.edu/hfrp/eval/issue22/eval3.html Balancing Priorities in the Evaluation of Ed Tech (importance of research rigor & local validity Evaluation Exchange v9#2 Summer 2003 http://www.gse.harvard.edu/hfrp/eval/issue22/eval1.html The Sloan Consortium creates benchmarks for effective current learning practices & incorporates them in Quality Framework goals (Effective practices are solicited & shared) http://www.aln.org/effective/index.asp Quality Framework model http://www.aln.org/effective/framework.asp GENDER AdiosBarbie.com http://www.adiosbarbie.com/ “a body image site for every body…!” See especially the link to the Feed the Model Game & the Science of Barbie (Barbioloogy) http://www.adiosbarbie.com/bology/) Killing Us Softly 3: Advertising’s Image of Women http://www.mediaed.org/videos/MediaGender&Diversity/KillingUsSoftly3 Story Guide: http://www.mediaed.org/videos/MediaGender&Diversity/KillingUsSoftly3/studygu ide/html Learning to read gender in ads: http://www.ltcconline.net/lukas/gender/background/howto.htm Kaiser Family Foundation Capitol Hill Briefing Series on Women's Health Policy links http://www.kff.org/docs/sections/women/briefing_series.html The newest archived Web cast is co-sponsored by the National Women's Law Center & the Kaiser Family Foundation re: the role of state-based policy in access to care for women and findings from a new report, "Women's Access to Care: A State-Level Analysis of Key Health Policies." http://www.kaisernetwork.org/healthcast/kff/09jul2003 GENETICS / GENOMICS U.S. Genetic Policy Panel Forms “Composition draws criticism for conservative stances on embryonic stem cell research “ http://www.biomedcentral.com/news/20030611/03 About the Genetic Information Nondiscrimination Act of 2003, a bipartisan agreement ratified by a Senate committee oin May 21, 2003.http://www.nationalpartnership.org/Content.cfm?L1=5&L2=2.0 UK Health Sec”y John Reid announced £50 Mil Genetics Strategy for the NHS. Genetics White Paper 'Our Inheritance, Our Future (a major UK initiative) http://www.doh.gov.uk/genetics/whitepaper.htm Does Genetic Research Threaten Our Civil Liberties? Genomics: genetic information & privacy http://www.actionbioscience.org/genomic/bereano.html National Academies reports re: genetic science & its applications. http://www.national-academies.org/headlines#sh0530 The Genetics of Autism http://www.actionbioscience.org/genomic/dougherty.html Ethics of Pharmacogenetics http://www.actionbioscience.org/genomic/barash.html What Do You Know about genetics…Test your knowledge (at pbs.org) (KQUE) http://www.pbs.org/fredfriendly/ourgenes/what_do_you_know.html Public Health Genetics (UK) http://www.phgu.org.uk Human Genome Project (HGP) Resources for Educators & Students (DOE) http://www.ornl.gov/TechResources/Human_Genome/education/education.html Genomics Glossaries & Taxonomies Glossary homepage last rev May 20, 2003, 3750+ definitions Cambridge Healthtech Inst http://www.genomicglossaries.com/ Searching for Communication brings up all kinds of links, including one for Bioinformatics. http://www.genomicglossaries.com/content/printpage.asp?REF=/content/Informat ics_Overview.asp GLOBAL / INTERNATIONAL / DEVELOPMENT International Health Care Survey: Widespread Error, Uncoordinated Care, & Missed Communication a survey done in the US, Australia, Canada, New Zealand, & the UK. Findings are also discussed in "Common Concerns Amid Diverse Systems: Health Care Experiences in 5 Countries," (Health Affairs, May/Jun 2003. More findings on each country are in 5 data briefs on the Commenwealth Fund's website http://www.cmwf.org/publist/quarterly/spr03qrt.pdf 12p pdf The Commonwealth Fund Quarterly Spring 2003, V9#1 See also http://www.cmwf.org/publist/quarterly/spr03qrtonline.asp?link=6#link1 Ensuring Valid Consent in Developing Country Context http://www.scidev.net/dossiers/index.cfm?fuseaction=policybrief&dossier=5&po licy=31 WHO Macroeconomics & Health Web site (new in May 2003) http://www.who.int/macrohealth/ Organisation for Econ Co-op & Dev (OECD) new Web site http://www.oecd.org/home/ OECD Data Show Health Expenditures at an All-time High http://www.oecd.org/document/39/0,2340,en_2649_37407_2789735_1_1_1_37407,00. html eHealth in Latin America and the Caribbean: Development & Policy Issues May 2003 http://www.jmir.org/2003/1/e4/index.htm Ethics and Equity in Health - Survey of Health Information websites in Mexico http://www.paho.org/English/DD/IKM/mex-eng.pdf HEALTH LITERACY & NUMERACY Health Literacy http://www.kqed.org/w/healthdialogues/topics/literacy.html (guests: Dr. Dean Shillinger, MD Sheila Krigler, Ann Monroe) call-in program that you can still listen to online . Also Nutrition http://www.kqed.org/w/healthdialogues/topics/nutrition.html ToothWoman Network provides free info & support (interactive Wwebsite) www.ToothWoman.net & http://www.toothwoman.net/press/fightagainst.htm "Reading Between the Lines:Focusing on Health Information Literacy" teleconf sponsored by Health Information Literacy Teleconference, the Med Libr Assn (MLA) 9/10/03 1 PM THE NLM WILL BE A VIEWING SITE—please let me know if you are interested in seeing this at the NLM http://www.mlanet.org/education/telecon/healthlit/index.html HEALTH CARE DELIVERY / QUALITY / DELIVERY / ACCESS / POLICY House Committee on Energy & Commerce Hearings, 108th Congress Serial No. 108-8 -- A Review of the Administration FY2004 Health Care Priorities, Fe 12, 2003 PDF http://frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=108_house_hearings &docid=f:86046.pdf or TEXT http://frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=108_house_hearings &docid=f:86046.wais How Good Is the Quality of Health Care in America? (RAND 6/25): http://www.rand.org/hot/press.03/06.25fact.html Chart http://www.rand.org/health/mcglynn_appa.pdf A User’s Manual for the IOMs’ Quality Chasm Report (which is a frequently cited report) http://www.healthaffairs.org/freecontent/v21n3/s11.htm (Health Affairs May/Jun 2002) Towards a New Politics of Health (UK) Politics of Health Group Discussion Paper no. 1 June 2003 http://www.liv.ac.uk/PublicHealth/Publications/publications01.html pdf http://www.liv.ac.uk/PublicHealth/Publications/pog2.pdf "Hidden Costs, Value Lost: Uninsurance in America" IOM June, 2003 http://search.nap.edu/books/030908931X/html/ he report is part of a series examining the consequences of being uninsured. More at: http://www4.nationalacademies.org/onpi/webextra.nsf/web/uninsured?OpenDocume nt What Other Programs Can Teach Us: Increasing Participation in Health Insurance Programs Am J Public Health (Jan2003 (http://www.ajph.org/cgi/content/full/93/1/67) "Public Reporting on Quality in the United States and the United Kingdom," Health Affairs 22 (May/June 2003): 134-48 http://www.healthaffairs.org/readeragent.php?ID=/usr/local/apache/sites/heal thaffairs.org/htdocs/Library/v22n3/s19.pdf Connecting for Health = a collaboration of 100+ public & private “stakeholders” representing every part of the health care system http://www.connectingforhealth.org/index.html Also http://www.connectingforhealth.org/ Press release: http://www.connectingforhealth.org/news/pressrelease_060503.html American Health Care: Why So Costly? Testimony for the Senate Appropriations Subcommittee. Karen Davis, June 2003. (Commonwealth Fund #654) http://www.cmwf.org/programs/quality/davis_senatecommitteetestimony_execsum_ 654.pdf News release: http://www.cmwf.org/media/releases/davistestimony654_release06112003.asp Health Economics Core Library, a project of the National Information Center on Health Svcs Research & Health Care Tech, NLM, & Academy Health, 1/13/03 [44p.] http://www.nlm.nih.gov/nichsr/corelib/hecon.pdf HIV / AIDS Visualizing Viral Activities: An Accurate Look into HIV Featured: http://www.sdsc.edu/GatherScatter/GSsummer96/larsen.html Also http://www.scripps.edu/pub/olson-web/people/larsen/ & click on Theater IAT Newsletter Update (semimonthly) by the International AIDS Trust tracks global AIDS development information to educate & “galvanise the public & decision makers” http://www.internationalaidstrust.org HIV Medicine 2003 (352 pages) http://HIVMedicine.com/textbook/download.htm 1.5 MB HIV at Work CDC Web site http://www.hivatwork.org/ Communication Initiative “window” for HIV/AIDS - http://www.comminit.com/hivaids/ Manual of Psychosocial Support re: psychological impact on children whose parents are dying/died from AIDS for teachers in schools & day care ctrs & members of local NGOs http://www.comminit.com/Materials/sld-4533.html INTERNET / IT / INFORMATION RETRIEVAL/ INFO LITERACY / WEB ISSUES Online Consumer Health Use: the Internet is not as commonly used for health-care purposes as reported 5/13/03 http://mednews.stanford.edu/news_releases_html/2003/mayrelease/Internet.htm The paper is in the May 14 2003 JAMA Explaining Variations in Health Care Web Use: The Role of Consumer Health Care "Valuegraphics" (PDF) http://www.pathinstitute.com/Articles/ValuegraphicsandWeb.pdf Managed Health Quarterly - Fall 2002 Has the Web Really Empowered Health Care Consumers? http://www.pathinstitute.com/Articles/Empowerment%20Article.pdf eEurope 2002: Quality Criteria for Health related Websites J Med Internet Res 2002; Dec 7; 4(2 http://www.jmir.org/2002/3/e15/index.htm Quality of Online Health Information: A Critical Ingredient for the Use of the Internet fm Quality of Health Information on the Internet Workshop on Health Information and Virtual Media Puebla Mexico, May 8, 2003 CRICS VI – BIREME http://www.paho.org/English/DD/IKM/rippen-mexico.pdf Quality of Health Information on the Internet: Achievements, Lessons and the Future Workshop on Health Information and Virtual Media Puebla Mexico, May 8, 2003 CRICS VI – BIREME http://www.paho.org/English/DD/IKM/risk.pdf False Oracles: Consumer Reaction to Learning the Truth About How Search Engines Work Results of a Consumer WebWatchEthnographic Study June 30, 2003 http://www.consumerwebwatch.org/news/searchengines/index.html Pdf rept (66p) http://www.consumerwebwatch.org/news/searchengines/ContextReport.pdf "Building Trust on the Web" transcript fm Consumer WebWatch's lst Nat’l Summit on Web Credibility http://www.consumerwebwatch.org/summit2003/transcript_searchengines.htm Web searchers measure web sites' appeal in seconds & are picky & impatient, typically visiting only the lst 3 results from a query, with 1 in 5 searchers spending 60 seconds or less on a linked Web document http://www.psu.edu/ur/2003/websiteappeal.html http://news.bbc.co.uk/1/hi/technology/3023514.stm Selected Sources Related to Website Evaluation http://istweb.syr.edu/~mcclure/Web.Eval.Bibl.May20.html CHI’s Information Mgt & Interpretation Glossary Evolving Terminology for Emerging Technologies (definitions of blogosphere, communities of practice, etc. www.genomicglossaries.com/content/Informationmgt.ASP To view all glossaries www.genomicglossaries.com Technology & Change bibliography (Technology Integration in Higher Ed: An Annotated Bibliography & Resource List to Support Systemic Reform) http://www.pt3.org/technology/technology_change.html Projects under development pg of (CTSB) Computer Science &Telecommunications Board (CTSB) of the National Academics” http://www7.nationalacademies.org/cstb/projects_under_development.html The CTSB most recent newsletter at http://www7.nationalacademies.org/cstb/newsletter-200302.pdf LITERACY / INFORMATION COMPETENCE / 21st C SKILLS A Partnership for 21st Century Skills http://www.21stcenturyskills.org/ report & free planning guide Learning in the 21st C (36p) http://www.21stcenturyskills.org/downloads/P21_Report.pdf Mile (Milestones for Improving Learning and Education) Guide fir 21st C http://www.21stcenturyskills.org/downloads/P21_Mile_Guide_Printable.pdf Competency in network use as a resource for citizenship: implications for the digital divide http://informationr.net/ir/8-3/paper153.html Information Research V8#3 Apr 2003 network competency is defined as people's capabilities to use the Internet in order to communicate and seek information and to utilize electronic public services. The findings are explored with regard to the digital divide vs. digital inclusion, discussing the prospects for future research. 21st century literacy national opinion survery finds concern that young people aren’t adequately prepared for 21st C. success…favor increased emphasis on “basics plus” approach to ed (AOL-Time-Warner). http://aoltimewarnerfoundation.org/pdf/P21_Report.pdf Survey Summary http://aoltimewarnerfoundation.org/pdf/keyfindingssummary.pdf http://media.aoltimewarner.com/media/fn_press_view.cfm?release_num=55253235 Other links http://aoltimewarnerfoundation.org/ Benton Foundation 21st Century Skills Initiative http://www.benton.org/initiatives/skillsinitiative.html 21st C Literacy Document (102p pdf) Mar 2003 http://www.21stcenturyliteracy.org/white/WhitePaperEnglish.pdf “Popular Culture, Textual Practice & Identity” http://www.aare.edu.au/00pap/bea00495.htm "If literacy is changing, in the context of the new technologies, schools & teachers need to find ways to work productively with students to help them become critical users & producers of new texts and literacies." A paper with analyses of text-based communication in the context of online gaming environments implying that literacy is changing. Cited by Stephen Downes' (OLDaily 6/27/03) who agrees that "Teachers need frameworks for reconceptualising literacy and curriculum that will both reflect and build on the digital literacies students have already acquired." Literacy in American Lives (25 p. book chap) http://assets.cambridge.org/0521783151/sample/0521783151WS.PDF Information and Its Counterfeits: Propaganda, Misinformation and Disinformation http://www.library.jhu.edu/elp/useit/evaluate/counterfeit.html MASS MEDIA / JOURNALISM / MARKETING / ADVERTISING Medicine & the Media: Medicine, the media and monetary interests: the need for transparency & professionalism http://www.mja.com.au/public/issues/173_11_041200/moynihan/moynihan.html Educ & Digital Television: Seizing the Opportunity to Realize the Medium's Potential Jan 1999 http://www.benton.org/publibrary/television/edtv.html Multimedia Training Kit “In the global effort to harness information & knowledge for sustainable development at the community level, there is an increasing realisation of the creative potential of linking the Internet to more traditional communication technologies, particularly radio and television.” http://www.itrainonline.org/itrainonline/mmtk/ The Society of Professional Journalists Code of Ethics http://www.spj.org/ethics_code.asp The Medium Vanishes? The Resurrection of the Mass Audience in the New Media Economy This article first appeared in M/C: A Journal of Media and Culture, 3.1, (2000), http://www.media-culture.org.au/0003/mass.html. It is republished in JEP: J Electronic Publishing 7/03 http://www.press.umich.edu/jep/07-03/downes.html Penn State selling Mass Media Article Index to EBSCO http://www.libraries.psu.edu/pubinfo/news/MassMediaIndex_703.html Jack Pontius (1940–2000) was the Univ Libraries' liaison to Penn State's College of Communications (was the School of Journalism) for 20 yrs. His death Apr 5, 2000, left a legacy with national significance—the Mass Media Article Index, a Web-based index to 40,000 articles on mass media (1984-April 2003) in 60+ res jnls, journalism reviews, recent encyclopedias & handbooks in comm. Studies..The Libraries recently sold the index to EBSCO... Gary Price, adds in his ResourceShelf post that at least for now the public can still search the Mass Media Index free Direct LINK to This ResourceShelf Post The Other Parent: The Inside Story of the Media's Effect on Our Children explores effects of TB, video games, & the Internet http://www.comminit.com/Materials/sld-5199.html Communication Initiative “window” for Radio - http://www.comminit.com/radio/ U.S. Hispanic youth get more alcohol advertised to them than non-Hispanic youth across major youth-oriented media, according to a Center on Alcohol Marketing & Youth rept. Press release http://camy.org/research/hispanic0403/ Summary + Rept (16p) http://camy.org/research/files/hispanic0403.pdf Summary only (3p) http://camy.org/research/files/hispanic0403execsum.pdf Exposure of African-American Youth to Alcohol Advertising Exec Summary http://camy.org/research/afam0603/ Whole Rept http://camy.org/research/files/afam0603.pdf Commercial Alert health links (Ralph Nader is Chair of Commercial Alert’s Board) http://www.commercialalert.org/index.php/category_id/5/subcategory_id/64/art icle_id/150 for Obesity -- Children http://www.commercialalert.org/index.php/category_id/5/subcategory_id/72/art icle_id/176 Obesity -- Laws and Bills http://www.commercialalert.org/index.php/category_id/5/subcategory_id/73/art icle_id/177 Blue Cross of CA TV Ad is a “Hit” with the Family Centered Health Care Consumer Segment PATH Inst Market Intelligence Rept http://www.pathinstitute.com/Articles/MarketIntelReport1.pdf MEDIA LITERACY What is media literacy? (incl. glossary of media literacy terms . Part of Media Literacy (KQED topic: education & learning) site )http://www.kqed.org/topics/education/medialiteracy/ Media literacy modules part of an Issues in Media, Literature & the arts course http://ruby.fgcu.edu/courses/tdugas/IDS3305/ See esp module 5 Consumr Culture http://ruby.fgcu.edu/courses/tdugas/IDS3305/module5.html ; module 6, Advertising Literacy http://ruby.fgcu.edu/courses/tdugas/IDS3305/module6.html ; &7 (internet Literacy) Teen Health & the Media Web site links to info re: Violence, tobacco, alcohol & other drugs, etc. http://depts.washington.edu/thmedia/ Under violence, for example, you can link to current news NEW MEDIA Stephen Downes argues that the traditional approach to using learning objects (stringing them together into lessons & courses) is misguided bec. it misuses new media, described as “a new language, with its own semantics & grammar, that informs how we should use the 'words' (learning objects) in that language”. Links to slides, refs etc.http://www.downes.ca/cgi-bin/website/research.cgi?item=1055276989 Mlearning: A consortium of cos working with universities & colleges to explore new ways of using the latest tech to enhance learning. Mobile Learning (mLearning) uses such innovations as wireless comm, PDAs, digital content fm traditional textbooks, etc… (cited by Stephen Downes’ OLDaily 6/9/03). http://www.mcgrawhill.ca/college/mlearning/ Best Practices for Digital Media by the Am Society of Magazine Editors (ASME) http://asme.magazine.org/guidelines/new_media.html MEDICAL ED / PHYSICIAN ROLE Problem-Based Learning: A Paradigm Shift or a Passing Fad? (Medical Education Online V1#2, 1996) HTML http://www.med-ed-online.org/f0000003 or PDF version of the article. http://www.msu.edu/~dsolomon/f0000003.pdf Explaining the de-prioritization of primary prevention: Physicians' perceptions of their role in the delivery of primary care http://www.biomedcentral.com/1471-2458/3/15 Sleep Deprivation, Fatigue and Effects on Performance—The Science and Its Implications for Resident Duty Hours talk at the ACGME Annual Educational Conference, Mar 2003 http://www.acgme.org/New/Dinges.pdf ORGAN DONATION Not Enough Information: Study Says Families Need More Information on Organ Donation ABCnews.com http://abcnews.go.com/sections/living/DailyNews/org&onor010703.html Organ Donor information in 14 languages http://www.mhcs.health.nsw.gov.au/health-public-affairs/mhcs/publications/51 95.html Living Donor Kidney Transplant streaming video http://www.stanfordhospital.com/media/winMedia/wmmDonorKidney.html TransWeb “All about transplantation and donation…” http://www.transweb.org/ PHARMACEUTICALS / DRUG MARKETING DTC Commercial Alert links for Drug Marketing http://www.commercialalert.org/index.php/category_id/5/subcategory_id/74/art icle_id/178) Talking the Talk survey conducted to determine the level of understanding of some common medicine-related terms found that many people do not know the meaning of words such as hypertension & decongestant. http://www.medsafe.govt.nz/Profs/PUarticles/talk.htm Prescriber Update article about Prescriber Update Article: I've Missed a Dose; What Should I Do? http://www.medsafe.govt.nz/PUArticlesPage.htm List of other articles: http://www.medsafe.govt.nz/PUArticlesPage.htm More info (re: drugs) for consumers http://www.medsafe.govt.nz/cons.htm Education & Debate: Unhealthy Spin BMJ 2003;326:1205-1207 (31 May) “Public relations companies are experts at "third party technique"—helping the drug industry separate the message from what could be seen as a self interested messenger…” http://bmj.com/cgi/content/full/326/7400/1205 CommercialAlert news release re: drug-sponsored “patient channel” in hospitals http://www.commercialalert.org/index.php/category_id/5/subcategory_id/74/art icle_id/180 CommercialAlert Health Overview fact sheets re: Drug Marketing links http://www.commercialalert.org/index.php/category_id/5/subcategory_id/74/art icle_id/178 Medicare Drug Benefit Calculator lets you enter a prescription drug costs & determine what you would pay under leading Medicare reform proposals being considered in Congress http://www.kaisernetwork.org/static/kncalc.cfm PRIVACY / HIPAA HIPAA links http://www.educause.edu/issues/hipaa.html Protecting Personal Health Information in Research: Understanding the HIPAA Privacy Rule (NIH Pub# 03-5388) http://privacyrule&research.nih.gov/pdf/HIPAA_Privacy_Rule_Booklet.pdf Accreditation Council for Graduate Medical Ed HIPAA Compliance documents http://www.acgme.org Includes FAQs http://www.acgme.org/HIPAA/HIPAA_FAQ.asp "Myths & Facts about the HIPAA Privacy Rule” re: myths about HIPAA Privacy Rule & what the law says. A condensed version was published on 5/21/03 by iHealthBeat & is at www.ihealthbeat.org. (must register) Full doc at http://www.healthprivacy.org/info-url_nocat2303/info-url_nocat_show.htm?doc_ id=173435 The Health Privacy Project links to websites by some federal agencies & professional & trade associations for HIPAA privacy regulation guidance http://www.healthprivacy.org/newsletter-url2306/newsletter-url_list.htm?sect ion=HIPAA%20Privacy%20Regulation%20%3Cbr%3EGuidance%20by%20Other%20Organizat ions HIPAA Compliance for Healthcare Providers http://www.activitytherapy.com/hipaa.htm NAS Computer Science and Technology Board (CTSB) Extending Law into Cyberspace Series info http://www7.nationalacademies.org/cstb/series_extendinglaw.html Links to white papers http://www7.nationalacademies.org/cstb/project_ciip_whitepapers.html PUBLIC HEALTH Due to a misunderstanding over the meaning of a single word ("procurement") Anthony Fauci states that Congress refused to authorize $250 mil meant to fund development of a 2d-generation anthrax vaccine http://www.biomedcentral.com/news/20030506/01 The Epidemic Information Exchange (Epi-X) is a new forum to “instantly” notify others (CDC & “various” health professionals) of an outbreak, research, & will create reports on specific health topics/track information. http://www.fcw.com/fcw/articles/2003/0707/web-cdc1-07-07-03.asp “SARS in the Context of Emerging Infectious Threats” [pdf] http://www.nyas.columbia.edu/sars/index.html (proceedings from the NY Acad Sci ): Review of CDC's Smallpox Vaccination Prog Implementation: Letter Rept 3 http://www.nap.edu/catalog/10714.html?onpi_listserv053003 Social Capital as a Health Determinant: How is it Defined? Health Policy Research Working Papers http://www.hc-sc.gc.ca/iacb-dgiac/arad-draa/english/rmdd/wpapers/engsocial2. html RISK / SAFETY Risk Comm: Lessons from Communication Science (by Don Zimmerman, Colorado State U) http://www.stc.org/proceedings/ConfProceed/2001/PDFs/STC48-000064.pdf Health Risk Communication in the Anthrax Vaccine Immunization: Lessonsfor the Future Apr 2001 http://www.aepi.army.mil/Publications/Health%20Risk%20Communication%20in%20t he%20Anthrax%20Vaccine.pdf Risk Communication bibliography with links to fulltext articles http://www.comm.cornell.edu/comm486/RISK%20Bibliography.htm Homepage for the risk comm. course the bibliography is for http://www.comm.cornell.edu/comm486/risk1.html How Do You Communicate Risk? In Sept the BMJ will publish a theme issue on communicating risk. The emphasis will be on drs communicating risks to individual patients, though communication of population risks to mass audiences will also be covered. More at http://bmj.com/cgi/content/full/327/7405/DC1 Risk Communication for Companies: Thriving and surviving in an age of risk contents: http://www.fz-juelich.de/mut/vdi/vdi_bericht_e/inhalt_e.html Title page http://www.fz-juelich.de/mut/vdi/vdi_bericht_e/index_e.html Patient Safety Conferences, Events, Presentations, Meetings, etc.http://www.vipcs.org/natlconf.htm The NINR, NIAAA, & the NHLBI invite applications for research related to health promotion/risk reduction amg adolescents. Application Deadline: October 1, 2003. For more information, visit http://grants1.nih.gov/grants/guide/pa-files/PA-02-159.html. Additional questions, contact Cindy McDermott by phone at 301/ 594-6869 or email at cindy_mcdermott@nih.gov. Risk Literacy & the Public http://www.doh.gov.uk/risk/risklit.pdf Communicating about risks to public health: Pointers to good practice http://www.doh.gov.uk/pointers.htm Interactive DES Self Assessment to determine risk http://www.cdc.gov/DES/consumers/guide/index.html part of DES Update http://www.cdc.gov/DES/ Risk (Environmental Literacy Council) http://www.enviroliteracy.org/article.php/415.html It’s Natural, but is it Safe? US Pharmacist http://www.uspharmacist.com/oldformat.asp?url=newlook/files/cred/acf681.htm Household Products Database http://householdproducts.nlm.nih.gov/ links brand name items to health effects records for 4,000+ products Theoretical Aspects of Risk Communication http://www.inspection.gc.ca/english/corpaffr/publications/riscomm/riscomm_ch 2e.shtml A socio-psychological model for analyzing risk communication processes http://www.massey.ac.nz/~trauma/issues/2000-2/rohrmann.htm Risk Communication & the Challenge of Hormesis (Oct 2002) http://www.belleonline.com/oct_02.pdf Risk Communication, News Media Communication (slides, May 2003) http://www.spd.usace.army.mil/cwpm/public/plan/pdact/03workshop/6_com.ppt Human Behavior and WMD Crisis/Risk Communication Workshop - Final Report (2001) http://www.dtra.mil/about/organization/finalreport.pdf SCHOLARLY COMM / PUBLISHING BMC (BioMed Central) Public Health publishes original res. on all aspects of epidemiology & public health medicine http://www.biomedcentral.com/browse/browse.asp?abbrev=bmcpublichealth&about= y& Reasons to submit papers are outlined at http://www.biomedcentral.com/info/authors/reasons See also http://www.biomedcentral.com/bmcpublichealth Related: Fees waived for university researchers publishing through BioMed Central http://bmj.com/cgi/content/full/326/7403/1350-d?etoc Publishing Online-Only Peer-Reviewed Biomedical Literature: 3 Years of Citation, Author Perception, and Usage Experience (JEP: J Electronic Publishing 6/03 http://www.press.umich.edu/jep/06-03/anderson.html Read before you cite! (cited by Stephen Downes’ OLDaily 5/29/03) Authors report a method of estimating what % of people actually read a cited paper. http://arxiv.org/ftp/cond-mat/papers/0212/0212043.pdf Peter Suber’s Free Online Scholarship (FOS) newsletter is now called "SPARC Open Access Newsletter" & is sponsored by SPARC (The Scholarly Publishing & Academic Resources Coalition) https://mx2.arl.org/Lists/SPARC-OANews/Message/95.html New-Model Scholarship: How Will it Survive? [pdf] 55p http://www.clir.org/pubs/reports/pub114/pub114.pdf Building Systems Responsive to Intellectual Tradition and Scholarly Culture by (Intensive disciplinarity in electronic svvs for research) http://www.press.umich.edu/jep/08-01/stephen.html “Because It's Time” about the rationale for starting Medical Education Online & thoughts re: how electronic networks & other advances in communication will impact scientific journals & scholarly communication in general. HTML http://www.med-ed-online.org/f0000002 . PDF http://www.msu.edu/~dsolomon/f0000002.pdf Sharing Publication-Related Data & Materials: Responsibilities of Authorship in the Life Sciences. NRC, NAS, 2003 http://www.nap.edu/books/0309088593/html/ SCIENCE LITERACY Learning Scientific Reasoning with the Interactive Computer (1994) http://www.ics.uci.edu/~archive/documentation/learning_scientific_reasoning/ learning_scientific_reasoning.html Foundation for Scientific Literacy homepage http://www.scientificliteracy.org/ Improving Science Literacy & Conservation in Developing Countries http://www.actionbioscience.org/newfrontiers/delarosa.html THEORY / METHODOLOGY The Nature of Theory (theory defined) slides http://bama.ua.edu/~droskos/Chapter%201/index.htm ( from Comm 300 Human Comm course http://bama.ua.edu/~droskos/courses_taught.htm ) Social Marketing and Health Communications http://p2001.health.org/THEORY/communications.htm Social-Cognitive Influences on the Use of Persuasive Message Strategies among Health Care Team Members Am Comm J V3#2 20 http://acjournal.org/holdings/vol3/Iss2/articles/cognition.html Developments in Constructivist Work in Communication Studies, Psychology, and Education: Introduction to the special section on Constructivism” Am Comm J V5#3 Spr 2002 http://acjournal.org/holdings/vol5/iss3/special/waltman.htm “The Impact of Constructivism on Education: Language, Discourse, and Meaning” Am Comm J V5#3 Spe 2002 http://acjournal.org/holdings/vol5/iss3/special/jones.htm Social network analysis (SNA) = the study of patterns of communication and the transmission of ideas. http://www.elearningpost.com/features/archives/001962.asp Effective Public Health Communications (slides) http://www.phs.ualberta.ca/staff/CindyJardine/PHS%20505%20Jardine.ppt VIOLENCE Teen Health & the Media Violence links http://depts.washington.edu/thmedia/news.cgi?section=violence , resources at http://depts.washington.edu/thmedia/view.cgi?section=violence&page=resources etc Grant $ Available fm Women’s Div, General Board of Global Ministries, The United Methodist Church to support projects addressing 5-18 yr olds’ needs in the areas of violence &/or abuse prevention &/or treatment. More info http://gbgm-umc.org/umw/BFCY_grant.html Violence as a Public Health Issue http://www.kqed.org/w/healthdialogues/topics/violence.html Links to research on the effects of violent media on kids: More links www.lionlamb.org/research.html The World report on violence and health, a PAHO/WHO collaboration with the Program for Appropriate Technologies in Health (PATH) June 2003 Full report in English (also in Fre & Spa): http://www.who.int/violence_injury_prevention/violence/world_report/wrvh1/en / Violence Against Women: The Health Sector Responds http://www.paho.org/English/DPM/GPP/GH/VAWhealthsector.htm Chap 1 - Gender-Based Violence: a Public Health &Human Rights Problem http://www.paho.org/English/DPM/GPP/GH/VAWChapter1.htm Chap2 - The "Critical Path" Studies: From Research to Action Chap 3 - Joining Forces to Address Gender-Based Violence in the Americas Chap 4 - Policy and Legal Reforms on Gender-Based Violence Chap 5 - The Health Sector: Building an Integrated Approach Chap 6 - What Happens at the Clinic? Chap 7 - Beyond the Clinic: Violence Prevention with Other Community Partner Chap 8 - Global Implications: The PAHO Approach to Gender-Based Violence GBV Resources Section ; Bibliography & References ; Full rept in French: http://www5.who.int/violence_injury_prevention/download.cfm?id=0000000591 Full rept in Spanish: http://www.paho.org/Spanish/AM/PUB/Violencia_2003.htm Building Bridges between Domestic Violence Advocates & Health Care Providers (Jun, 1999) http://www.vaw.umn.edu/documents/bridges/bridges.html Deborah W. Yoho Co-moderator, NIFL-Health Listserv President, SC Adult Literacy Educators Executive Director, Greater Columbia Literacy Council 2728 Devine Street, Columbia, SC 29205 803-765-2555 Fax 803-779-8417 dwyoho@earthlink.net
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