Return-Path: <nifl-health@literacy.nifl.gov> Received: from literacy (localhost [127.0.0.1]) by literacy.nifl.gov (8.10.2/8.10.2) with SMTP id j18HHfC18543; Tue, 8 Feb 2005 12:17:41 -0500 (EST) Date: Tue, 8 Feb 2005 12:17:41 -0500 (EST) Message-Id: <DA7C33D047C8244D96D20EB0E55586A51723B0@PHSXMB17.partners.org> Errors-To: listowner@literacy.nifl.gov Reply-To: nifl-health@literacy.nifl.gov Originator: nifl-health@literacy.nifl.gov Sender: nifl-health@literacy.nifl.gov Precedence: bulk From: "Pittman, Taryn J, R.N." <TPITTMAN@PARTNERS.ORG> To: Multiple recipients of list <nifl-health@literacy.nifl.gov> Subject: [NIFL-HEALTH:4648] RE: firstfind X-Listprocessor-Version: 6.0c -- ListProcessor by Anastasios Kotsikonas Content-Type: text/plain X-Mailer: Internet Mail Service (5.5.2657.72) Status: O Content-Length: 12626 Lines: 384 It sounds to me like you are talking about finding a research utilization model to assist in translating research data into practice. May I suggest the following website to help get you started http://www.researchutilization.org/learnru/welcome2ru/ Good Luck, Taryn Pittman,RN, MSN Patient Education Specialist/Manager Patient and Family Learning Center Massachusetts General Hospital Boston, MA -----Original Message----- From: nifl-health@nifl.gov [mailto:nifl-health@nifl.gov]On Behalf Of Eugenio Longoria Sent: Tuesday, February 08, 2005 11:32 AM To: Multiple recipients of list Subject: [NIFL-HEALTH:4647] RE: firstfind I agree. It is a first good step, let us take a few more. I just recently started a position involving research on aids and tobacco use. Part of the agenda of the research group is to translate research into practice. I could use a little guidance. Any suggestions on how this process takes place? Eu- -----Original Message----- From: nifl-health@nifl.gov [mailto:nifl-health@nifl.gov] On Behalf Of David Rosen Sent: Tuesday, February 08, 2005 11:08 AM To: Multiple recipients of list Subject: [NIFL-HEALTH:4646] firstfind Hello Eugenio, I was involved as a consultant in the first stage of developing firstfind.info. Just to clarify, firstfind.info is not a single web site. It is a portal to web sites. The New York City and Westchester County librarians -- all experts in web searching, and trained in how to recognize well-designed web sites for low-literate adults which have high-interest content -- chose web pages which most closely met the firstfind criteria. Note that firstfind.info is not a literacy web site, as such, not designed to provide instruction for low-literate adults. Instead, it is for library patrons who want to use the web to get information, but whose reading skills may not be high enough to access many web sites. firstfind.info makes it easier for them to find web sites which have the information they want and which have relatively accessible text and a simple, straightforward design. I would agree that many of the sites chosen are at an intermediate reading level, not a low literacy level, but that is because not enough web sites yet exist which fit the criteria (high interest, informative, plain English) for all the topics. As Audrey pointed out in her message of February 4th, there is still a lot to be done, but firstfind.info is a good step in the right direction. David J. Rosen djrosen@comcast.net On Feb 8, 2005, at 10:32 AM, Eugenio Longoria wrote: > Although this seems to be a good website, it is still not very good for > people with low levels of literacy. It is not as plain and simple as > they > advertise it is. > > Eu- > > -----Original Message----- > From: nifl-health@nifl.gov [mailto:nifl-health@nifl.gov] On Behalf Of > Audrey > Riffenburgh > Sent: Tuesday, February 08, 2005 9:10 AM > To: Multiple recipients of list > Subject: [NIFL-HEALTH:4642] Re: Firstfind.info resources on the web? > > Hello, > > I've heard from three people now who have had no problem with > firstfind.info > > so it must be on my end. Thank you for letting me know. I do hope to > see the > > site. It sounds like it would be very useful. > > Audrey Riffenburgh, M.A. > President, Riffenburgh & Associates > P.O. Box 6670, Albuquerque, NM 87197 > Phone: (505) 345-1107 Fax: (505) 345-1104 > E-mail: ar@plainlanguageworks.com > Specialists in Plain Language and Health Literacy since 1994 > and > Principal & Founding Member, The Clear Language Group > www.clearlanguagegroup.com > ----- Original Message ----- > From: "David Rosen" <DJRosen@TheWorld.com> > To: "Multiple recipients of list" <nifl-health@literacy.nifl.gov> > Sent: Monday, February 07, 2005 7:59 PM > Subject: [NIFL-HEALTH:4641] Re: Firstfind.info resources on the web? > > >> Hello Audrey, Andrew and others, >> >> I have just tried accessing firstfind.info using a PC and Mac and >> several >> different browsers. It works on all -- except for some reason >> Internet >> explorer 5.2 for a Mac running OS X. I'll bring this to the >> attention of >> Robin Osborne at the Westchester Library System to see if there is >> something which can be done. >> >> It might be helpful to Robin, Audrey, to know what system (PC or MAC, >> what > >> operating system) and browser (type and version) you are using. >> >> firstfind.info is a great resource, which I certainly hope you will be >> able to see. >> >> All the best, >> >> David >> >> David J. Rosen >> djrosen@comcast.net >> On Feb 7, 2005, at 8:52 PM, Andrew Pleasant wrote: >> >>> Seems to be working well on my system. >>> >>> Andrew Pleasant >>> Assistant Professor >>> Rutgers University >>> >>> >>>> Greetings, again, >>>> >>>> Bruce Carmel told us about a resource called firstfind.info which I >>>> am >>>> eager >>>> to see but we can't get the site to work. Has anyone else tried? The >>>> only >>>> item in the menu that worked today or on Saturday is the Local >>>> Resources. >>>> Can anyone fill us in on what's up? >>>> >>>> Audrey Riffenburgh, M.A. >>>> President, Riffenburgh & Associates >>>> P.O. Box 6670, Albuquerque, NM 87197 >>>> Phone: (505) 345-1107 Fax: (505) 345-1104 >>>> E-mail: ar@plainlanguageworks.com >>>> Specialists in Plain Language and Health Literacy since 1994 >>>> and >>>> Principal & Founding Member, The Clear Language Group >>>> www.clearlanguagegroup.com >>>> >>>> ----- Original Message ----- >>>> From: "Bruce Carmel" <bcarmel@rocketmail.com> >>>> To: "Multiple recipients of list" <nifl-health@literacy.nifl.gov> >>>> Sent: Saturday, February 05, 2005 7:18 PM >>>> Subject: [NIFL-HEALTH:4633] Re: "Easy-to-read" resources on the web >>>> >>>> >>>>> firstfind.info is probably worth a look for anyone >>>>> looking for >>>>> "easy-to-read" web info. It's a library of >>>>> non-commercial web sites selected by librarians. David >>>>> Rosen, Susan Cowles, Maura Donnelly, Robin Osborne, >>>>> and I helped train them to use more than grade level >>>>> as a selection criterion. In fact we did not use grade >>>>> level, but were more holistic. >>>>> Bruce Carmel >>>>> http://firstfind.info >>>>> >>>>> >>>>> --- Audrey Riffenburgh <ar@plainlanguageworks.com> >>>>> wrote: >>>>> >>>>>> Greetings, all, >>>>>> >>>>>> >>>>>> >>>>>> In my ten years working in health literacy, I have >>>>>> seen a huge increase in >>>>>> materials on the web which are labeled as easy. >>>>>> There are SOME easy-to-read >>>>>> health resources on the web but many of the >>>>>> materials labeled as >>>>>> easy-to-read are still far too difficult for most of >>>>>> the general public. As >>>>>> you probably know, the average U.S. adult reads at >>>>>> about 8th "grade" level. >>>>>> Much of the material on the web that is labeled >>>>>> "easy" or "plain language" >>>>>> is written at much higher levels. (There are >>>>>> inherent problems in using >>>>>> grade levels to label adult readers but this gives >>>>>> you a general idea of the >>>>>> level of functioning vs. the literacy demands of >>>>>> printed materials.) >>>>>> >>>>>> >>>>>> >>>>>> I recently analyzed the reading level of seven >>>>>> materials on, or linked to, >>>>>> MedlinePlus' "Easy-to-Read" area. The average >>>>>> reading level was 11 and the >>>>>> range was from 8 to 16. The results were similar for >>>>>> the FDA's website where >>>>>> they offer "easy" resources. >>>>>> >>>>>> >>>>>> >>>>>> The problem is in defining "easy." What is easy to >>>>>> an average or lower >>>>>> skilled reader is entirely different from what is >>>>>> easy for those doing the >>>>>> labeling. So I suggest great caution in using >>>>>> materials labeled this way. >>>>>> They may not achieve what you are hoping for or >>>>>> assuming they will achieve. >>>>>> >>>>>> >>>>>> >>>>>> Plus, keep in mind that there are dozens of factors >>>>>> beyond reading level >>>>>> that affect a document's appropriateness. These >>>>>> include organization, amount >>>>>> of information, whether the information is what the >>>>>> reader is looking for, >>>>>> approach, tone, design, layout, cultural >>>>>> appropriateness, and more. So even >>>>>> if the reading level is at 7th or 8th "grade" level, >>>>>> you cannot >>>>>> automatically assume the piece is going to work for >>>>>> the general public or >>>>>> readers with limited literacy skills. >>>>>> >>>>>> >>>>>> >>>>>> Yours for better health in the U.S., >>>>>> >>>>>> >>>>>> >>>>>> Audrey Riffenburgh, M.A. >>>>>> President, Riffenburgh & Associates >>>>>> P.O. Box 6670, Albuquerque, NM 87197 >>>>>> Phone: (505) 345-1107 Fax: (505) 345-1104 >>>>>> E-mail: ar@plainlanguageworks.com >>>>>> Specialists in Plain Language and Health Literacy >>>>>> since 1994 >>>>>> and >>>>>> Principal & Founding Member, The Clear Language >>>>>> Group >>>>>> www.clearlanguagegroup.com >>>>>> >>>>>> ----- Original Message ----- >>>>>> From: "Elizabeth Horvath" <Mhrsemh@omh.state.ny.us> >>>>>> To: "Multiple recipients of list" >>>>>> <nifl-health@literacy.nifl.gov> >>>>>> Sent: Friday, February 04, 2005 8:52 AM >>>>>> Subject: [NIFL-HEALTH:4629] Re: Patient resources >>>>>> for phone >>>>>> >>>>>> >>>>>>> One place to start might be MedlinePlus, they have >>>>>> a topic called Talking >>>>>>> with your Doctor: >>>>>>> >>>>>>> >>>>>> >>>>> http://www.nlm.nih.gov/medlineplus/talkingwithyourdoctor.html >>>>>>> >>>>>>> I did not review the materials listed there for >>>>>> reading level, but you can >>>>>>> check the links and see if they have easy-to-read >>>>>> materials on the >>>>>>> individual websites. >>>>>>> >>>>>>> If you don't currently use MedlinePlus, do some >>>>>> exploring. If you click on >>>>>>> "health topics, there will be a button that takes >>>>>> you to "Easy to Read," >>>>>>> and you can check out the easy materials by topic. >>>>>> Unfortunately, "Talking >>>>>>> with your Doctor" is not among to choices. >>>>>>> >>>>>>> Beti >>>>>>>>>> mburton@nmdp.org 02/03/05 02:37PM >>> >>>>>>> Hi all - >>>>>>> >>>>>>> I am having a difficult time locating general >>>>>> information that helps >>>>>>> patients advocate for themselves over the phone. >>>>>> Getting the resource >>>>>>> information to patients is the relatively easy >>>>>> part. It's getting them >>>>>>> to actually *call* and connect with the suggested >>>>>> resource that is the >>>>>>> real challenge. >>>>>>> >>>>>>> I've found lots and lots of stuff to help >>>>>> healthcare providers >>>>>>> communicate with their patients over the phone, >>>>>> but nothing to help >>>>>>> patients communicate with their providers. I do >>>>>> have a material that >>>>>>> lists specific questions for patients to ask their >>>>>> health insurance to >>>>>>> determine their coverage limits and what they need >>>>>> to write down, but it >>>>>>> isn't generalizable to a broader context. >>>>>>> >>>>>>> Does anyone have something that could essentially >>>>>> "coach" patients with >>>>>>> how to make an effective phone call to a >>>>>> resource/organization and how >>>>>>> to document that conversation? Maybe something >>>>>> similar to the "AskMe3" >>>>>>> brochure? >>>>>>> >>>>>>> Thanks, >>>>>>> >>>>>>> Martha Burton Santibanez >>>>>>> Outreach Specialist, Office of Patient Advocacy >>>>>>> National Marow Donor Program >>>>>>> www.marrow.org >>>>>>> 1 (888) 999-6743 x8336 >>>>>>> 1 (612) 627-8195 fax >>>>>>> >>>>>>> Beti Horvath, MLS >>>>>>> Library Services >>>>>>> Mid-Hudson Forensic Psychiatric Center >>>>>>> New Hampton NY 10958 >>>>>>> mhrsemh@omh.state.ny.us >>>>>>> 845-374-3171x3625 >>>>>>> Fax 845-374-3171x4625 >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> IMPORTANT NOTICE: This e-mail is meant only for >>>>>> the use of the intended >>>>>>> recipient. It may contain confidential >>>>>> information which is legally >>>>>>> privileged or otherwise protected by law. If you >>>>>> received this e-mail >>>>>>> in error or from someone who was not authorized to >>>>>> send it to you, you >>>>>>> are strictly prohibited from reviewing, using, >>>>>> disseminating, >>>>>>> distributing or copying the e-mail. PLEASE NOTIFY >>>>>> US IMMEDIATELY OF THE >>>>>>> ERROR BY RETURN E-MAIL AND DELETE THIS MESSAGE >>>>>> FROM YOUR SYSTEM. Thank >>>>>>> you for your cooperation. >>>>>>> >>>>>> >>>>>> >>>>>> >>>>> >>>>> >>>>> >>>>> >>>>> __________________________________ >>>>> Do you Yahoo!? >>>>> Take Yahoo! Mail with you! Get it on your mobile phone. >>>>> http://mobile.yahoo.com/maildemo >>>>> >>> >> > > >
This archive was generated by hypermail 2b30 : Mon Oct 31 2005 - 09:49:37 EST