Return-Path: <nifl-health@literacy.nifl.gov> Received: from literacy (localhost [127.0.0.1]) by literacy.nifl.gov (8.10.2/8.10.2) with SMTP id j18NdnC23819; Tue, 8 Feb 2005 18:39:49 -0500 (EST) Date: Tue, 8 Feb 2005 18:39:49 -0500 (EST) Message-Id: <002a01c50e36$eaaa0140$2d8e2344@D5NPYT31> Errors-To: listowner@literacy.nifl.gov Reply-To: nifl-health@literacy.nifl.gov Originator: nifl-health@literacy.nifl.gov Sender: nifl-health@literacy.nifl.gov Precedence: bulk From: "Audrey Riffenburgh" <ar@plainlanguageworks.com> To: Multiple recipients of list <nifl-health@literacy.nifl.gov> Subject: [NIFL-HEALTH:4650] Re: Getting Firstfind.info site to work X-Listprocessor-Version: 6.0c -- ListProcessor by Anastasios Kotsikonas X-Mailer: Microsoft Outlook Express 6.00.2900.2180 Content-Transfer-Encoding: 7bit Content-Type: text/plain; Status: O Content-Length: 12012 Lines: 347 Hello, again, Since my last post, I have heard off line from another person who also could not get the site to work. Thank you for the thought about www, C.Elliot, but the problem is not in getting to the site. I can get it up on my screen as could the other person who e-mailed me. But when we click on the buttons, they don't work. The page stays blank. I talked with the developers of the site today and we're going to try to figure out what settings need to be changed, perhaps in my firewall. It would be instructive to all of us if there are others "out there" having trouble. If you are not able to get the site to respond once you get there, would you e-mail me off-list please? Thanks! Audrey Riffenburgh, M.A. President, Riffenburgh & Associates P.O. Box 6670, Albuquerque, NM 87197 Phone: (505) 345-1107 Fax: (505) 345-1104 E-mail: ar@plainlanguageworks.com Specialists in Plain Language and Health Literacy since 1994 and Principal & Founding Member, The Clear Language Group www.clearlanguagegroup.com ----- Original Message ----- From: "lib_literacycntr" <lib_literacycntr@dawsoncollege.qc.ca> To: "Multiple recipients of list" <nifl-health@literacy.nifl.gov> Sent: Tuesday, February 08, 2005 8:13 AM Subject: [NIFL-HEALTH:4643] Re: Firstfind.info resources on the web? > Hello, > > I wonder if Audrey's difficulty may be the automatic impulse to insert > 'www' > before the domain name? The link is: > > http://firstfind.info > > Hope this helps. > > C. Elliott > The Centre for Literacy of Quebec > > > On Tue, 8 Feb 2005 09:07:18 -0500 (EST), Audrey Riffenburgh wrote >> Hello, >> >> I've heard from three people now who have had no problem with >> firstfind.info so it must be on my end. Thank you for letting me >> know. I do hope to see the site. It sounds like it would be very useful. >> >> Audrey Riffenburgh, M.A. >> President, Riffenburgh & Associates >> P.O. Box 6670, Albuquerque, NM 87197 >> Phone: (505) 345-1107 Fax: (505) 345-1104 >> E-mail: ar@plainlanguageworks.com >> Specialists in Plain Language and Health Literacy since 1994 >> and >> Principal & Founding Member, The Clear Language Group >> www.clearlanguagegroup.com >> ----- Original Message ----- >> From: "David Rosen" <DJRosen@TheWorld.com> >> To: "Multiple recipients of list" <nifl-health@literacy.nifl.gov> >> Sent: Monday, February 07, 2005 7:59 PM >> Subject: [NIFL-HEALTH:4641] Re: Firstfind.info resources on the web? >> >> > Hello Audrey, Andrew and others, >> > >> > I have just tried accessing firstfind.info using a PC and Mac and >> > several >> > different browsers. It works on all -- except for some reason Internet >> > explorer 5.2 for a Mac running OS X. I'll bring this to the attention >> > of >> > Robin Osborne at the Westchester Library System to see if there is >> > something which can be done. >> > >> > It might be helpful to Robin, Audrey, to know what system (PC or MAC, > what >> > operating system) and browser (type and version) you are using. >> > >> > firstfind.info is a great resource, which I certainly hope you will be >> > able to see. >> > >> > All the best, >> > >> > David >> > >> > David J. Rosen >> > djrosen@comcast.net >> > On Feb 7, 2005, at 8:52 PM, Andrew Pleasant wrote: >> > >> >> Seems to be working well on my system. >> >> >> >> Andrew Pleasant >> >> Assistant Professor >> >> Rutgers University >> >> >> >> >> >>> Greetings, again, >> >>> >> >>> Bruce Carmel told us about a resource called firstfind.info which I >> >>> am >> >>> eager >> >>> to see but we can't get the site to work. Has anyone else tried? The >> >>> only >> >>> item in the menu that worked today or on Saturday is the Local >> >>> Resources. >> >>> Can anyone fill us in on what's up? >> >>> >> >>> Audrey Riffenburgh, M.A. >> >>> President, Riffenburgh & Associates >> >>> P.O. Box 6670, Albuquerque, NM 87197 >> >>> Phone: (505) 345-1107 Fax: (505) 345-1104 >> >>> E-mail: ar@plainlanguageworks.com >> >>> Specialists in Plain Language and Health Literacy since 1994 >> >>> and >> >>> Principal & Founding Member, The Clear Language Group >> >>> www.clearlanguagegroup.com >> >>> >> >>> ----- Original Message ----- >> >>> From: "Bruce Carmel" <bcarmel@rocketmail.com> >> >>> To: "Multiple recipients of list" <nifl-health@literacy.nifl.gov> >> >>> Sent: Saturday, February 05, 2005 7:18 PM >> >>> Subject: [NIFL-HEALTH:4633] Re: "Easy-to-read" resources on the web >> >>> >> >>> >> >>>> firstfind.info is probably worth a look for anyone >> >>>> looking for >> >>>> "easy-to-read" web info. It's a library of >> >>>> non-commercial web sites selected by librarians. David >> >>>> Rosen, Susan Cowles, Maura Donnelly, Robin Osborne, >> >>>> and I helped train them to use more than grade level >> >>>> as a selection criterion. In fact we did not use grade >> >>>> level, but were more holistic. >> >>>> Bruce Carmel >> >>>> http://firstfind.info >> >>>> >> >>>> >> >>>> --- Audrey Riffenburgh <ar@plainlanguageworks.com> >> >>>> wrote: >> >>>> >> >>>>> Greetings, all, >> >>>>> >> >>>>> >> >>>>> >> >>>>> In my ten years working in health literacy, I have >> >>>>> seen a huge increase in >> >>>>> materials on the web which are labeled as easy. >> >>>>> There are SOME easy-to-read >> >>>>> health resources on the web but many of the >> >>>>> materials labeled as >> >>>>> easy-to-read are still far too difficult for most of >> >>>>> the general public. As >> >>>>> you probably know, the average U.S. adult reads at >> >>>>> about 8th "grade" level. >> >>>>> Much of the material on the web that is labeled >> >>>>> "easy" or "plain language" >> >>>>> is written at much higher levels. (There are >> >>>>> inherent problems in using >> >>>>> grade levels to label adult readers but this gives >> >>>>> you a general idea of the >> >>>>> level of functioning vs. the literacy demands of >> >>>>> printed materials.) >> >>>>> >> >>>>> >> >>>>> >> >>>>> I recently analyzed the reading level of seven >> >>>>> materials on, or linked to, >> >>>>> MedlinePlus' "Easy-to-Read" area. The average >> >>>>> reading level was 11 and the >> >>>>> range was from 8 to 16. The results were similar for >> >>>>> the FDA's website where >> >>>>> they offer "easy" resources. >> >>>>> >> >>>>> >> >>>>> >> >>>>> The problem is in defining "easy." What is easy to >> >>>>> an average or lower >> >>>>> skilled reader is entirely different from what is >> >>>>> easy for those doing the >> >>>>> labeling. So I suggest great caution in using >> >>>>> materials labeled this way. >> >>>>> They may not achieve what you are hoping for or >> >>>>> assuming they will achieve. >> >>>>> >> >>>>> >> >>>>> >> >>>>> Plus, keep in mind that there are dozens of factors >> >>>>> beyond reading level >> >>>>> that affect a document's appropriateness. These >> >>>>> include organization, amount >> >>>>> of information, whether the information is what the >> >>>>> reader is looking for, >> >>>>> approach, tone, design, layout, cultural >> >>>>> appropriateness, and more. So even >> >>>>> if the reading level is at 7th or 8th "grade" level, >> >>>>> you cannot >> >>>>> automatically assume the piece is going to work for >> >>>>> the general public or >> >>>>> readers with limited literacy skills. >> >>>>> >> >>>>> >> >>>>> >> >>>>> Yours for better health in the U.S., >> >>>>> >> >>>>> >> >>>>> >> >>>>> Audrey Riffenburgh, M.A. >> >>>>> President, Riffenburgh & Associates >> >>>>> P.O. Box 6670, Albuquerque, NM 87197 >> >>>>> Phone: (505) 345-1107 Fax: (505) 345-1104 >> >>>>> E-mail: ar@plainlanguageworks.com >> >>>>> Specialists in Plain Language and Health Literacy >> >>>>> since 1994 >> >>>>> and >> >>>>> Principal & Founding Member, The Clear Language >> >>>>> Group >> >>>>> www.clearlanguagegroup.com >> >>>>> >> >>>>> ----- Original Message ----- >> >>>>> From: "Elizabeth Horvath" <Mhrsemh@omh.state.ny.us> >> >>>>> To: "Multiple recipients of list" >> >>>>> <nifl-health@literacy.nifl.gov> >> >>>>> Sent: Friday, February 04, 2005 8:52 AM >> >>>>> Subject: [NIFL-HEALTH:4629] Re: Patient resources >> >>> >> for phone >> >>>>> >> >>>>> >> >>>>> > One place to start might be MedlinePlus, they have >> >>>>> a topic called Talking >> >>>>> > with your Doctor: >> >>>>> > >> >>>>> > >> >>>>> >> >>>> http://www.nlm.nih.gov/medlineplus/talkingwithyourdoctor.html >> >>>>> > >> >>>>> > I did not review the materials listed there for >> >>>>> reading level, but you can >> >>>>> > check the links and see if they have easy-to-read >> >>>>> materials on the >> >>>>> > individual websites. >> >>>>> > >> >>>>> > If you don't currently use MedlinePlus, do some >> >>>>> exploring. If you click on >> >>>>> > "health topics, there will be a button that takes >> >>>>> you to "Easy to Read," >> >>>>> > and you can check out the easy materials by topic. >> >>>>> Unfortunately, "Talking >> >>>>> > with your Doctor" is not among to choices. >> >>>>> > >> >>>>> > Beti >> >>>>> >>>> mburton@nmdp.org 02/03/05 02:37PM >>> >> >>>>> > Hi all - >> >>>>> > >> >>>>> > I am having a difficult time locating general >> >>>>> information that helps >> >>>>> > patients advocate for themselves over the phone. >> >>>>> Getting the resource >> >>>>> > information to patients is the relatively easy >> >>>>> part. It's getting them >> >>>>> > to actually *call* and connect with the suggested >> >>>>> resource that is the >> >>>>> > real challenge. >> >>>>> > >> >>>>> > I've found lots and lots of stuff to help >> >>>>> healthcare providers >> >>>>> > communicate with their patients over the phone, >> >>>>> but nothing to help >> >>>>> > patients communicate with their providers. I do >> >>>>> have a material that >> >>>>> > lists specific questions for patients to ask their >> >>>>> health insurance to >> >>>>> > determine their coverage limits and what they need >> >>>>> to write down, but it >> >>>>> > isn't generalizable to a broader context. >> >>>>> > >> >>>>> > Does anyone have something that could essentially >> >>>>> "coach" patients with >> >>>>> > how to make an effective phone call to a >> >>>>> resource/organization and how >> >>>>> > to document that conversation? Maybe something >> >>>>> similar to the "AskMe3" >> >>>>> > brochure? >> >>>>> > >> >>>>> > Thanks, >> >>>>> > >> >>>>> > Martha Burton Santibanez >> >>>>> > Outreach Specialist, Office of Patient Advocacy >> >>>>> > National Marow Donor Program >> >>>>> > www.marrow.org >> >>>>> > 1 (888) 999-6743 x8336 >> >>>>> > 1 (612) 627-8195 fax >> >>>>> > >> >>>>> > Beti Horvath, MLS >> >>>>> > Library Services >> >>>>> > Mid-Hudson Forensic Psychiatric Center >> >>>>> > New Hampton NY 10958 >> >>>>> > mhrsemh@omh.state.ny.us >> >>>>> > 845-374-3171x3625 >> >>>>> > Fax 845-374-3171x4625 >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > IMPORTANT NOTICE: This e-mail is meant only for >> >>>>> the use of the intended >> >>>>> > recipient. It may contain confidential >> >>>>> information which is legally >> >>>>> > privileged or otherwise protected by law. If you >> >>>>> received this e-mail >> >>>>> > in error or from someone who was not authorized to >> >>>>> send it to you, you >> >>>>> > are strictly prohibited from reviewing, using, >> >>>>> disseminating, >> >>>>> > distributing or copying the e-mail. PLEASE NOTIFY >> >>>>> US IMMEDIATELY OF THE >> >>>>> > ERROR BY RETURN E-MAIL AND DELETE THIS MESSAGE >> >>>>> FROM YOUR SYSTEM. Thank >> >>>>> > you for your cooperation. >> >>>>> > >> >>>>> >> >>>>> >> >>>>> >> >>>> >> >>>> >> >>>> >> >>>> >> >>>> __________________________________ >> >>>> Do you Yahoo!? >> >>>> Take Yahoo! Mail with you! Get it on your mobile phone. >> >>>> http://mobile.yahoo.com/maildemo >> >>>> >> >> >> > > > > ***************************** > Claire Elliott > Librarian > The Centre for Literacy > Tel: (514) 931-8731 ext. 1415 > Fax: (514) 931-5181 > >
This archive was generated by hypermail 2b30 : Mon Oct 31 2005 - 09:49:37 EST