[NIFL-HEALTH:4642] Re: Firstfind.info resources on the web?

From: Audrey Riffenburgh (ar@plainlanguageworks.com)
Date: Tue Feb 08 2005 - 09:09:58 EST


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From: "Audrey Riffenburgh" <ar@plainlanguageworks.com>
To: Multiple recipients of list <nifl-health@literacy.nifl.gov>
Subject: [NIFL-HEALTH:4642] Re: Firstfind.info resources on the web?
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Hello,

I've heard from three people now who have had no problem with firstfind.info 
so it must be on my end. Thank you for letting me know. I do hope to see the 
site. It sounds like it would be very useful.

Audrey Riffenburgh, M.A.
President, Riffenburgh & Associates
P.O. Box 6670, Albuquerque, NM  87197
Phone: (505) 345-1107 Fax: (505) 345-1104
E-mail: ar@plainlanguageworks.com
Specialists in Plain Language and Health Literacy since 1994
and
Principal & Founding Member, The Clear Language Group
www.clearlanguagegroup.com
----- Original Message ----- 
From: "David Rosen" <DJRosen@TheWorld.com>
To: "Multiple recipients of list" <nifl-health@literacy.nifl.gov>
Sent: Monday, February 07, 2005 7:59 PM
Subject: [NIFL-HEALTH:4641] Re: Firstfind.info resources on the web?


> Hello Audrey, Andrew and others,
>
> I have just tried accessing firstfind.info using a PC and Mac and several 
> different browsers.  It works on all -- except for some reason Internet 
> explorer 5.2 for a Mac running OS X.  I'll bring this to the attention of 
> Robin Osborne at the Westchester Library System to see if there is 
> something which can be done.
>
> It might be helpful to Robin, Audrey, to know what system (PC or MAC, what 
> operating system) and browser (type and version) you are using.
>
> firstfind.info is a great resource, which I certainly hope you will be 
> able to see.
>
> All the best,
>
> David
>
> David J. Rosen
> djrosen@comcast.net
> On Feb 7, 2005, at 8:52 PM, Andrew Pleasant wrote:
>
>> Seems to be working well on my system.
>>
>> Andrew Pleasant
>> Assistant Professor
>> Rutgers University
>>
>>
>>> Greetings, again,
>>>
>>> Bruce Carmel told us about a resource called firstfind.info which I am 
>>> eager
>>> to see but we can't get the site to work. Has anyone else tried? The 
>>> only
>>> item in the menu that worked today or on Saturday is the Local 
>>> Resources.
>>> Can anyone fill us in on what's up?
>>>
>>> Audrey Riffenburgh, M.A.
>>> President, Riffenburgh & Associates
>>> P.O. Box 6670, Albuquerque, NM  87197
>>> Phone: (505) 345-1107 Fax: (505) 345-1104
>>> E-mail: ar@plainlanguageworks.com
>>> Specialists in Plain Language and Health Literacy since 1994
>>> and
>>> Principal & Founding Member, The Clear Language Group
>>> www.clearlanguagegroup.com
>>>
>>> ----- Original Message -----
>>> From: "Bruce Carmel" <bcarmel@rocketmail.com>
>>> To: "Multiple recipients of list" <nifl-health@literacy.nifl.gov>
>>> Sent: Saturday, February 05, 2005 7:18 PM
>>> Subject: [NIFL-HEALTH:4633] Re: "Easy-to-read" resources on the web
>>>
>>>
>>>>  firstfind.info is probably worth a look for anyone
>>>>  looking for
>>>>  "easy-to-read" web info.  It's a library of
>>>>  non-commercial web sites selected by librarians. David
>>>>  Rosen, Susan Cowles, Maura Donnelly, Robin Osborne,
>>>>  and I helped train them to use more than grade level
>>>>  as a selection criterion. In fact we did not use grade
>>>>  level, but were more holistic.
>>>>  Bruce Carmel
>>>>  http://firstfind.info
>>>>
>>>>
>>>>  --- Audrey Riffenburgh <ar@plainlanguageworks.com>
>>>>  wrote:
>>>>
>>>>>  Greetings, all,
>>>>>
>>>>>
>>>>>
>>>>>  In my ten years working in health literacy, I have
>>>>>  seen a huge increase in
>>>>>  materials on the web which are labeled as easy.
>>>>>  There are SOME easy-to-read
>>>>>  health resources on the web but many of the
>>>>>  materials labeled as
>>>>>  easy-to-read are still far too difficult for most of
>>>>>  the general public. As
>>>>>  you probably know, the average U.S. adult reads at
>>>>>  about 8th "grade" level.
>>>>>  Much of the material on the web that is labeled
>>>>>  "easy" or "plain language"
>>>>>  is written at much higher levels. (There are
>>>>>  inherent problems in using
>>>>>  grade levels to label adult readers but this gives
>>>>>  you a general idea of the
>>>>>  level of functioning vs. the literacy demands of
>>>>>  printed materials.)
>>>>>
>>>>>
>>>>>
>>>>>  I recently analyzed the reading level of seven
>>>>>  materials on, or linked to,
>>>>>  MedlinePlus' "Easy-to-Read" area. The average
>>>>>  reading level was 11 and the
>>>>>  range was from 8 to 16. The results were similar for
>>>>>  the FDA's website where
>>>>>  they offer "easy" resources.
>>>>>
>>>>>
>>>>>
>>>>>  The problem is in defining "easy." What is easy to
>>>>>  an average or lower
>>>>>  skilled reader is entirely different from what is
>>>>>  easy for those doing the
>>>>>  labeling. So I suggest great caution in using
>>>>>  materials labeled this way.
>>>>>  They may not achieve what you are hoping for or
>>>>>  assuming they will achieve.
>>>>>
>>>>>
>>>>>
>>>>>  Plus, keep in mind that there are dozens of factors
>>>>>  beyond reading level
>>>>>  that affect a document's appropriateness. These
>>>>>  include organization, amount
>>>>>  of information, whether the information is what the
>>>>>  reader is looking for,
>>>>>  approach, tone, design, layout, cultural
>>>>>  appropriateness, and more. So even
>>>>>  if the reading level is at 7th or 8th "grade" level,
>>>>>  you cannot
>>>>>  automatically assume the piece is going to work for
>>>>>  the general public or
>>>>>  readers with limited literacy skills.
>>>>>
>>>>>
>>>>>
>>>>>  Yours for better health in the U.S.,
>>>>>
>>>>>
>>>>>
>>>>>  Audrey Riffenburgh, M.A.
>>>>>  President, Riffenburgh & Associates
>>>>>  P.O. Box 6670, Albuquerque, NM  87197
>>>>>  Phone: (505) 345-1107 Fax: (505) 345-1104
>>>>>  E-mail: ar@plainlanguageworks.com
>>>>>  Specialists in Plain Language and Health Literacy
>>>>>  since 1994
>>>>>  and
>>>>>  Principal & Founding Member, The Clear Language
>>>>>  Group
>>>>>  www.clearlanguagegroup.com
>>>>>
>>>>>  ----- Original Message -----
>>>>>  From: "Elizabeth Horvath" <Mhrsemh@omh.state.ny.us>
>>>>>  To: "Multiple recipients of list"
>>>>>  <nifl-health@literacy.nifl.gov>
>>>>>  Sent: Friday, February 04, 2005 8:52 AM
>>>>>  Subject: [NIFL-HEALTH:4629] Re: Patient resources
>>>  >> for phone
>>>>>
>>>>>
>>>>>  > One place to start might be MedlinePlus, they have
>>>>>  a topic called Talking
>>>>>  > with your Doctor:
>>>>>  >
>>>>>  >
>>>>>
>>>>  http://www.nlm.nih.gov/medlineplus/talkingwithyourdoctor.html
>>>>>  >
>>>>>  > I did not review the materials listed there for
>>>>>  reading level, but you can
>>>>>  > check the links and see if they have easy-to-read
>>>>>  materials on the
>>>>>  > individual websites.
>>>>>  >
>>>>>  > If you don't currently use MedlinePlus, do some
>>>>>  exploring. If you click on
>>>>>  > "health topics, there will be a button that takes
>>>>>  you to "Easy to Read,"
>>>>>  > and you can check out the easy materials by topic.
>>>>>  Unfortunately, "Talking
>>>>>  > with your Doctor" is not among to choices.
>>>>>  >
>>>>>  > Beti
>>>>>  >>>> mburton@nmdp.org 02/03/05 02:37PM >>>
>>>>>  > Hi all -
>>>>>  >
>>>>>  > I am having a difficult time locating general
>>>>>  information that helps
>>>>>  > patients advocate for themselves over the phone.
>>>>>  Getting the resource
>>>>>  > information to patients is the relatively easy
>>>>>  part.  It's getting them
>>>>>  > to actually *call* and connect with the suggested
>>>>>  resource that is the
>>>>>  > real challenge.
>>>>>  >
>>>>>  > I've found lots and lots of stuff to help
>>>>>  healthcare providers
>>>>>  > communicate with their patients over the phone,
>>>>>  but nothing to help
>>>>>  > patients communicate with their providers.  I do
>>>>>  have a material that
>>>>>  > lists specific questions for patients to ask their
>>>>>  health insurance to
>>>>>  > determine their coverage limits and what they need
>>>>>  to write down, but it
>>>>>  > isn't generalizable to a broader context.
>>>>>  >
>>>>>  > Does anyone have something that could essentially
>>>>>  "coach" patients with
>>>>>  > how to make an effective phone call to a
>>>>>  resource/organization and how
>>>>>  > to document that conversation?  Maybe something
>>>>>  similar to the "AskMe3"
>>>>>  > brochure?
>>>>>  >
>>>>>  > Thanks,
>>>>>  >
>>>>>  > Martha Burton Santibanez
>>>>>  > Outreach Specialist, Office of Patient Advocacy
>>>>>  > National Marow Donor Program
>>>>>  > www.marrow.org
>>>>>  > 1 (888) 999-6743 x8336
>>>>>  > 1 (612) 627-8195 fax
>>>>>  >
>>>>>  > Beti Horvath, MLS
>>>>>  > Library Services
>>>>>  > Mid-Hudson Forensic Psychiatric Center
>>>>>  > New Hampton NY 10958
>>>>>  > mhrsemh@omh.state.ny.us
>>>>>  > 845-374-3171x3625
>>>>>  > Fax 845-374-3171x4625
>>>>>  >
>>>>>  >
>>>>>  >
>>>>>  >
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>>>>>
>>>>>
>>>>
>>>>
>>>>
>>>>
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> 



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