Survey
description
The National Home and Hospice Care Survey (NHHCS) is a continuing series
of surveys of home and hospice care agencies in the United States.
Information was collected about agencies that provide home and hospice
care and about their current patients and discharges. The NHHCS is based
on a probability sample of home health agencies and hospices. The survey
includes all type of agencies that provide home health and hospice care
without regard to whether they are Medicare or Medicaid certified or
whether they are licensed.
Home health agencies
and hospices are usually defined in terms of the type of care they
provide. Home health care is provided to individuals and families in their
place of residence for the purpose of promoting, maintaining, or restoring
health or for maximizing the level of independence while minimizing the
effects of disability and illness, including terminal illness. Hospice
care is defined as a program of palliative and supportive care services
providing physical, psychological, social, and spiritual care for dying
persons, their families, and other loved ones. Hospice services are
available in both home and inpatient settings.
Data
file description
All data collected in the NHHCS are contained on one CD-ROM for each year.
Each CD-ROM consists of three files: agency, current patients, and
discharged patients. Each record includes a common agency number to allow
linkage between them. The CD-ROM has been edited to ensure consistency and
to adjust for nonresponse.
List
of data file variables at a glance
Agency file
Agency identifier codes
Number of current patients
Type of ownership
Affiliation
Certification status
1992: Number of full and part-time staff
Part-time staff
hours
Nonpayroll
staff hours
1993-94, 1996, and 1998, and 2000: Services available
Current patient
file
Patient identifier code
Sex
Age
Race
Hispanic origin
Marital status
Current living arrangements
Referral source
Diagnoses at admission and at time of survey
1996: Surgical and diagnostic procedures
related
to admission
Type of care received
Primary care giver and relationship
Aids used
Vision and hearing status
Activities of daily living
Instrumental activities of daily living
Services provided
Service providers
1992-94: Number of visits
Amount billed for care
1992-94,1998, and 2000: Dates covered by bill
Primary and secondary sources of payment
Discharged
patient file
Patient identifier code
Date of discharge
Sex
Age
Race
Hispanic origin
Marital status
Living arrangements at discharge
Referral source
Diagnoses at admission and discharge
1996, 1998, and 2000: Surgical and diagnostic procedures
related
to admission
Reason for discharge
Type of care received
Primary care giver and relationship
Aids used
Vision and hearing status
Activities of daily living
Instrumental activities of daily living
Services provided
Service providers
1992-94: Number of visits
Amount billed for care
1992-94, 1998, and 2000: Dates covered by bill
Primary and secondary sources of payment
Data
file technical characteristics
Type
of file
Number
of records
Agency
file:
2000
1,425
1998
1,087
1996
1,053
1994
1,393
1993
1,286
1992
1,245
Current
patient file:
2000
7,159
1998
5,522
1996
5,438
1994
7,265
1993
6,981
1992
6,897
Discharge
file:
2000
6,273
1998
4,885
1996
4,758
1994
6,635
1993
6,376
1992
6,765
Geographic
coverage
The NHHCS covers all types
of home health and hospice care agencies in the United States. Geographic
identifiers are available by the U.S. Bureau of Census regions and
metropolitan statistical area (MSA) indicators.
Data
availability
NHHCS data are collected periodically. Data are only available for
individual years from 1992-94, 1996, 1998, and 2000.
Ordering
information
The NHHCS can only be purchased through the National Technical Information
Service (NTIS).
Call NTIS for current pricing. The NTIS order number is as follows:
Data on CD-ROM
Data
year
NTIS
order no.
1998
PB2000-500106
1996
PB98-500614
1994
PB96-501309
1993
PB95-504007
1992
PB94-501426
Documentation
content
Documentation is
included on the CD-ROM.
Related
reports
A detailed discussion about the development of the NHHCS is available in
the Vital and Health Statistics,Series 1, No. 33. Summary tables with final
data for most of the information collected in the survey, technical notes
on method and design, definitions of terms, and copies of the
questionnaire are available in Series,
13, No. 117 (for 1992), No. 123 (for 1993) , No. 126 (for
1994), and No. 141 (for 1996) Vital and Health Statistics. Data
from the NHHCS is also available in the Advance
Data series.
Contact
Long-Term Care Statistics Branch
Division of Health Care Statistics
National Center for Health Statistics
Centers for Disease Control and Prevention
3311 Toledo Road, Rm. 3409
Hyattsville, Maryland 20782-2003
(301) 458-4747