Directory of Digestive Diseases Organizations for Professionals
This directory lists organizations that represent health professionals involved in the study and treatment of digestive diseases. The organizations do not provide medical services or advice.
Alpha-1 Foundation
2937 SW 27th Avenue, Suite 302
Miami, FL 33133
Phone: 1–877–2–CURE–A1 (1–877–228–7321) or 305–567–9888
Fax: 305–567–1317
Email: info@alphaone.org
Internet: www.alphaone.org
Mission: To provide leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for alpha-1-antitrypsin deficiency, a genetically inherited disease affecting either the liver or lung in children and adults.
Materials: Information for healthcare providers, researchers, patients, friends, and family members.
[Top]
American Association for the Study of Liver Diseases (AASLD)
1729 King Street, Suite 200
Alexandria, VA 22314–2720
Phone: 703–299–9766
Fax: 703–299–9622
Email: aasld@aasld.org
Internet: www.aasld.org
Mission: To advance the science and practice of hepatology, thereby promoting liver health and optimal care of patients with liver and biliary tract diseases.
Materials: Journals (available online)—Hepatology and Liver Transplantation; newsletter; membership directory.
[Top]
American College of Gastroenterology (ACG)
P.O. Box 342260
Bethesda, MD 20827–2260
Phone: 301–263–9000
Internet: www.acg.gi.org
Mission: To serve clinical and scientific information needs of member physicians and surgeons who specialize in digestive and related disorders. Emphasis is on clinical practice, teaching, and research.
Materials: Journal—American Journal of Gastroenterology and Nature Clinical Practice Gastroenterology & Hepatology; member newsletter; patient educational brochures and online resources are also available.
[Top]
American Dietetic Association (ADA)
120 South Riverside Plaza, Suite 2000
Chicago, IL 60606–6995
Internet: www.eatright.org
Mission: Leading the future of dietetics.
Materials: Monthly professional journal—The Journal of the American Dietetic Association; monthly newsletter—ADA Courier; books and other resources for consumers and professionals.
[Top]
American Gastroenterological Association (AGA)
National Office
4930 Del Ray Avenue
Bethesda, MD 20814
Phone: 301–654–2055
Fax: 301–654–5920
Email: member@gastro.org
Internet: www.gastro.org
Mission: The American Gastroenterological Association, a society of physicians and scientists, serves as an advocate for its members and their patients; supports members' practice and scientific needs; and promotes the discovery, dissemination, and application of new knowledge, leading to the prevention, treatment, and cure of digestive diseases.
Materials: Journals—Gastroenterology and Clinical Perspectives in Gastroenterology; weekly newsletter—GI Practice Management News; reports—Legislative Report and Burden of Diseases Report; membership magazine—AGA Digest.
[Top]
American Motility Society (AMS)
American Motility Society
45685 Harmony Lane
Belleville, MI 48111
Phone: 734–699–1130
Fax: 734–699–1136
Email: admin@motilitysociety.org
Internet: www.motilitysociety.org
Mission: To promote research and sponsor professional education seminars about gastrointestinal motility topics, including disorders of esophageal, gastric, small intestinal, and colonic function; sponsor biennial meetings (even years), symposia, and courses.
Materials: Member newsletter—The Recorder; patient resources and clinician resources are also available.
[Top]
American Pancreatic Association
P.O. Box 14906
Minneapolis, MN 55414
Phone: 612–626–9797
Fax: 612–625–7700
Email: apa@umn.edu
Internet: www.american-pancreatic-association.org
Mission: To provide a forum for presentation of scientific research related to the pancreas.
Materials: Journal—Pancreas.
[Top]
American Society for Gastrointestinal Endoscopy (ASGE)
1520 Kensington Road, Suite 202
Oak Brook, IL 60523
Phone: 630–573–0600
Fax: 630–573–0691
Email: info@asge.org
Internet: www.asge.org
Mission: To provide information, training, and practice guidelines about gastrointestinal endoscopic techniques.
Materials: Journal—Gastrointestinal Endoscopy; Clinical Updates (quarterly); clinical guidelines; member newsletter; patient information brochures.
[Top]
American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.)
8630 Fenton Street, Suite 412
Silver Spring, MD 20910–3805
Phone: 1–800–727–4567 or 301–587–6315
Fax: 301–587–2365
Email: aspen@nutr.org
Internet: www.nutritioncare.org
Mission: To offer information and continuing medical education to professionals involved in the care of parenterally and enterally fed patients.
Materials: Journals—Journal of Parenteral and Enteral Nutrition and Nutrition in Clinical Practice; member newsletter; nutrition support team resource kit; standards; clinical guidelines; nutrition support clinical pathways.
[Top]
American Society of Abdominal Surgeons (ASAS)
1 East Emerson Street
Melrose, MA 02176
Phone: 781–665–6102
Fax: 781–665–4127
Email: office@abdominalsurg.org
Internet: www.abdominalsurg.org
Mission: To sponsor an extensive continuing education program for physicians in the field of abdominal surgery and maintain a library.
Materials: Journal—Journal of Abdominal Surgery; member newsletter.
[Top]
American Society of Colon and Rectal Surgeons (ASCRS)
85 West Algonquin Road, Suite 550
Arlington Heights, IL 60005
Phone: 847–290–9184
Fax: 847–290–9203
Email: ascrs@fascrs.org
Internet: www.fascrs.org
Mission: To assure high quality patient care through research and education for the prevention and management of disorders and diseases of the colon, rectum, and anus.
Materials: Journal—Diseases of the Colon and Rectum; Practice Parameters; Self-Assessment Program; patient education brochures; annual meeting; strategic plan; Research Foundation grants; listing of board-certified colorectal surgeons; material on colorectal awareness month; residency programs; links to affiliated organizations.
[Top]
ARPKD/CHF Alliance
Autosomal Recessive Polycystic Kidney Disease & Congenital Hepatic Fibrosis Alliance
38 John Drive
Kirkwood, PA 17536
Phone: 1–800–708–8892
Fax: 1–800–807–9110
Email: info@arpkd.org
Internet: www.arpkd.org
Mission: To educate, advocate, support, and advance research specific to autosomal recessive polycystic kidney disease (ARPKD) and congenital hepatic fibrosis (CHF).
Materials: Free ARPKD/CHF Alliance newsletters and educational materials, email listserv, bereavement information and resources, “Clinical Care Considerations”—managed care guidelines for “informed individualized decision making”; “CARPKD/CHF Alliance Repository”—a blood and data bank of affected persons.
[Top]
Centers for Disease Control and Prevention (CDC), Division of Viral Hepatitis
1600 Clifton Road
Mail Stop C–14
Atlanta, GA 30333
Phone: 1–800–CDC–INFO (232–4636)
Fax: 404–371–5488
Email: cdcinfo@cdc.gov
Internet: www.cdc.gov/hepatitis
Mission: The Division of Viral Hepatitis is the Public Health Service component that provides the scientific and programmatic foundation for the prevention, control, and elimination of viral hepatitis virus infections in the United States, and assists the international public health community in these activities.
Materials: Fact sheets; brochures; videos; slide sets; posters; continuing education credited program.
[Top]
Digestive Disease National Coalition (DDNC)
507 Capitol Court NE, Suite 200
Washington, DC 20002
Phone: 202–544–7497
Fax: 202–546–7105
Email: edberg@hmcw.org
Internet: www.ddnc.org
Mission: To work cooperatively to improve access to and the quality of digestive disease health care in order to promote the best possible medical outcome and quality of life for current and future patients with digestive diseases.
Materials: Brochures; patient education materials.
[Top]
Iron Disorders Institute
2722 Wade Hampton Boulevard, Suite A
Greenville, SC 29615
Phone: 1–888–565–IRON (4766) or 864–292–1175
Fax: 864–292–1878
Email: ironstore@irondisorders.org
Internet: www.irondisorders.org
Mission: To reduce pain, suffering, and unnecessary death due to disorders of iron through education, awareness, and facilitating research.
Materials: Newsletters—idIntouch and Iron Bytes; books—Guide to Hemochromatosis, Guide to Anemia, Cooking With Less Iron, Exposing the Hidden Dangers of Iron; forms—Personal Health Profile and Physician’s Reference Chart; e-publication—idInsight.
[Top]
National Diabetes Education Program (NDEP)
1 Diabetes Way
Bethesda, MD 20892–3560
Phone: 1–800–438–5383
Fax: 703–738–4929
Email: ndep@mail.nih.gov
Internet: www.ndep.nih.gov
Mission: To improve the treatment and outcomes for people with diabetes, to promote early diagnosis, and to prevent or delay the onset of diabetes.
Materials: Diabetes education materials are available free or at little cost.
[Top]
National Diabetes Information Clearinghouse (NDIC)
1 Information Way
Bethesda, MD 20892–3560
Phone: 1–800–860–8747
Fax: 703–738–4929
Email: ndic@info.niddk.nih.gov
Internet: www.diabetes.niddk.nih.gov
Mission: To serve as a diabetes informational, educational, and referral resource for health professionals and the public. NDIC is a service of the NIDDK.
Materials: Diabetes education materials are available free or at little cost. Literature searches on a myriad of subjects related to diabetes are provided. NDIC publishes Diabetes Dateline, a quarterly newsletter.
[Top]
North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN)
P.O. Box 6
Flourtown, PA 19031
Phone: 215–233–0808
Fax: 215–233–3918
Email: naspghan@naspghan.org
Internet: www.naspghan.org
Mission: To be a world leader in advancing the science and clinical practice of pediatric gastroenterology, hepatology, and nutrition in health and disease.
Materials: Journal—Journal of Pediatric Gastroenterology and Nutrition; member newsletter.
[Top]
Oley Foundation for Home Parenteral and Enteral Nutrition (HomePEN)
214 Hun Memorial, A–28
Albany Medical Center
Albany, NY 12208–3478
Phone: 1–800–776–OLEY (6539) or 518–262–5079 (outside U.S.)
Fax: 518–262–5528
Email: bishopj@mail.amc.edu
Internet: www.oley.org
Mission: To enrich the lives of those requiring home nutrition support.
Materials: Bimonthly newsletter—LifelineLetter; charts—Home Parenteral Nutrition Complication Chart and Home Enteral Nutrition (HEN) Complication Chart; video library of annual conference presentations; video—Choices in Nutrition: Understanding HPN Therapy Options; HomePEN Family Network; toll-free consumer networking.
[Top]
The Society for Surgery of the Alimentary Tract (SSAT)
900 Cummings Center, Suite 221–U
Beverly, MA 01915
Phone: 978–927–8330
Fax: 978–524–8890
Email: ssat@prri.com
Internet: www.ssat.com
Mission: To provide a forum for exchange of information among physicians specializing in alimentary tract surgery.
Materials: Journal—Journal of Gastrointestinal Surgery.
[Top]
Society of American Gastrointestinal Endoscopic Surgeons (SAGES)
11300 West Olympic Boulevard, Suite 600
Los Angeles, CA 90064
Phone: 310–437–0544
Fax: 310–437–0585
Email: sagesweb@sages.org
Internet: www.sages.org
Mission: To encourage study and practice of gastrointestinal endoscopy, laparoscopy, and minimal access surgery.
Materials: Guidelines; SAGES Manual: Fundamentals of Laparoscopy and GI Endoscopy; position statements; patient education information.
[Top]
Society of Gastroenterology Nurses and Associates Inc. (SGNA)
401 North Michigan Avenue
Chicago, IL 60611
Phone: 1–800–245–SGNA (7462) or 312–321–5165
Fax: 312–527–6658
Email: sgna@smithbucklin.com
Internet: www.sgna.org
Mission: To provide members with continuing education opportunities, practice and training guidelines, and information about trends and developments in the field of gastroenterology.
Materials: Journal—Gastroenterology Nursing; professional instructional and resource materials; member newsletter—SGNA News.
[Top]
United Network for Organ Sharing (UNOS)
P.O. Box 2484
Richmond, VA 23218
Phone: 1–888–894–6361 or 804–782–4800
Internet: www.unos.org
Mission: To advance organ availability and transplantation by uniting and supporting its communities for the benefit of patients through education, technology, and policy development.
Materials: Journal—UNOS Update; other educational materials.
[Top]
Weight-control Information Network (WIN)
1 WIN Way
Bethesda, MD 20892–3665
Phone: 1–877–946–4627 or 202–828–1025
Fax: 202–828–1028
Email: win@info.niddk.nih.gov
Internet: win.niddk.nih.gov/index.htm
Mission: To address the health information needs of individuals through the production and dissemination of educational materials. In addition, WIN is developing communication strategies for a pilot program to encourage at-risk individuals to achieve and maintain a healthy weight by making changes in their lifestyle.
Materials: Fact sheets, brochures, reprints, consensus statements, and literature searches on weight control, obesity, and weight-related nutritional disorders. WIN's semiannual newsletter, WIN Notes, provides health professionals with the latest research findings and progress in the WIN program.
[Top]
Wound, Ostomy, and Continence Nurses Society (WOCN)
1500 Commerce Parkway, Suite C
Mt. Laurel, NJ 08054
Phone: 1–888–224–9626
Fax: 856–439–0525
Email: wocn_info@wocn.org
Internet: www.wocn.org
Mission: A professional nursing society that supports its members by promoting educational, clinical, and research opportunities to guide the delivery of health care to individuals with wounds, ostomies, and incontinence.
Materials: Journal—Journal of Wound, Ostomy and Continence Nursing; Guidelines for Management; member newsletter—WOCN News; other professional, educational, and clinical resource materials.
[Top]
National Digestive Diseases Information Clearinghouse
2 Information Way
Bethesda, MD 20892–3570
Phone: 1–800–891–5389
TTY: 1–866–569–1162
Fax: 703–738–4929
Email: nddic@info.niddk.nih.gov
Internet: www.digestive.niddk.nih.gov
The National Digestive Diseases Information Clearinghouse (NDDIC) is a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health of the U.S. Department of Health and Human Services. Established in 1980, the Clearinghouse provides information about digestive diseases to people with digestive disorders and to their families, health care professionals, and the public. The NDDIC answers inquiries, develops and distributes publications, and works closely with professional and patient organizations and Government agencies to coordinate resources about digestive diseases.
Publications produced by the Clearinghouse are carefully reviewed by both NIDDK scientists and outside experts.
This publication is not copyrighted. The Clearinghouse encourages users of this publication to duplicate and distribute as many copies as desired.
January 2007
[Top]
|
