Cephalic Disorders Organizations

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Birth Defect Research for Children, Inc.
800 Celebration Avenue
Suite 225
Celebration, FL   34747
betty@birthdefects.org
http://www.birthdefects.org
Tel: 407-566-8304
Fax: 407-566-8341

Lissencephaly Network
10408 Bitterroot Court
Ft. Wayne, IN   46804
LissencephalyOne@aol.com
http://www.lissencephaly.org
Tel: 260-432-4310
Fax: 260-432-4310

March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY   10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203

National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT   06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291