Cerebral Cavernous Malformation Organizations

National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291

Angioma Alliance 142 W. York Street, Suite 708 Norfolk, VA   23510-2015 info@angiomaalliance.org http://www.angiomaalliance.org Tel: 866-HEAL-CCM (432-5226) 757-623-0615