Neurofibromatosis type 2
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- More Information (Found: 7 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
- General
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MedlinePlus, a Web site designed by the National Library of Medicine Web site to help you research your health questions, provides more information about this topic. Click on the link to view this information.
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The National Human Genome Research Institute's (NHGRI) mission encompasses a broad range of studies aimed at understanding the structure and function of the human genome and its role in health and disease. Click on the link to view the information page on this topic.
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The National Institute of Neurological Disorders and Stroke (NINDS) collects and disseminates research information related to neurological disorders. Click on the link to view information on this topic.
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The National Institute on Deafness and Other Communication Disorders (NIDCD) conducts and supports biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. Click on the link to view information on this topic.
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The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Neurofibromatosis type 2. Click on the link to go to OMIM and review these resources.
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PubMed lists journal articles that discuss Neurofibromatosis type 2. Click on the link to go to PubMed and review citations to these articles.
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Genetics Home Reference (GHR) contains a condition summary on Neurofibromatosis type 2. Click on the link to go to GHR and review this summary.
- Support Groups (Found: 6 Resources)
Groups providing a wide range of services, supportive resources, and information
- Umbrella Organizations
- Disease-Specific Organizations
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The Neurofibromatosis Association
Quayside House
38 High Street, Kingston-on-Thames
SURREY KT1 1HL
Phone: 44(0)208 439 1234
Fax: 44(0)208 439 1200
E-mail: nfa@zetnet.co.uk
Web site: http://www.nfauk.org
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The Children's Tumor Foundation
95 Pine Street, 16th floor
New York, N.Y. 1005
Telephone: (212) 344-6633
Toll Free: (800) 323-7938
E-mail: info@ctf.org
Web site: http://www.ctf.org/
- Live Chat
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The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
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RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Research & Clinical Trials (Found: 1 Resources)
Resources where you may find research studies and clinical trials
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ClinicalTrials.gov lists trials that are studying or have studied Neurofibromatosis type 2. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- Services (Found: 1 Resources)
Links to Web sites that offer services, such as tools to locate specialists, specialty clinics, genetic services, and genetic testing laboratories
- Healthcare Professional Online Directory
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The Children's Tumor Foundation (CTF) has developed a online directory that can direct you to physicians that have experience with neurofibromatosis. To locate a physician, click on the CTF link. Alternatively, you can get help with a physician referral by contacting Corinne McGown via email: cmcgown@ctf.org or phone: (212) 344-6633 x 227.
- More Search Tools (Found: 1 Resources)
Resources to help you find more information on this topic
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The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.