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Personalized Health Care Pioneers, Partnerships, Progress

Personalized Health Care:  Pioneers, Partnerships, Progress

This is the second report prepared by the Initiative on Personalized Health Care, located in the Office of the Assistant Secretary for Planning and Evaluation in the U.S. Department of Health and Human Services.  The Initiative was undertaken as a priority of HHS Secretary Michael O. Leavitt.

An earlier report, Personalized Health Care: Opportunities, Pathways, Resources, was released in September 2007 and focused especially on federal activities.  It included summaries of federal efforts in the areas of expanding the science base for personalized health care; supporting health information technology; regulatory responsibilities; implementing personalized medical products and services in clinical practice; and ethical, legal and social issues.  Some 50 programmatic areas were inventoried.

In this year’s report, the Initiative seeks to bring into focus a sampling of activities that are now underway in different parts of the private and academic health care sectors toward integrating personalized health care into clinical practice.  This includes efforts to employ genomics and other molecular level techniques in clinical care; the use of health information technology in care, including the integration of clinical care with research goals; and the realignment of traditional organizations toward enhanced individualization of treatment and patient-centric approaches.

The Initiative commissioned seven papers, examining the challenges and opportunities of personalized health care from the perspective of different stakeholder elements in the health care sector.  These perspectives range from the integrated health delivery organizations and academic medical centers to medical professional societies, venture capital firms, and patient advocacy organizations. 

The Initiative also invited several leading “communities” (medical institutions and their partners) to contribute reports of their activities and plans toward different aspects of personalized health care.  Ten community case studies in this report help illustrate how personalized health care is coming to be defined, designed and delivered at the leading edge.

In October, the commissioned papers and community case studies were shared with participants of the National Summit on Personalized Health Care in Deer Valley, Utah.  The Summit brought together leaders in the personalized health care field to identify barriers and strategies for progress.  A summary of proceedings and outcomes of the Summit is also included in this report.

The commissioned papers and community case studies included in this report are intended to help illustrate the scope, status and goals of personalized health care. They represent the views and experience of the authors, and are not intended to represent the opinions or policies of the U.S. Department of Health and Human Services.

Click here for a printer friendly copy of the full report (302 pages)

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