Sotos Syndrome Organizations

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Sotos Syndrome Support Association
P.O. Box 4626
Wheaton, IL   60189
sssa@well.com
http://www.well.com/user/sssa
Tel: 888-246-7772

The Arc of the United States
1010 Wayne Avenue
Suite 650
Silver Spring, MD   20910
Info@thearc.org
http://www.thearc.org
Tel: 301-565-3842
Fax: 301-565-3843 or -5342

March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY   10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203

National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT   06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291