Co-funding Institute(s):
National Institute of Allergy and Infectious Diseases (NIAID)
Diagnosis and Management of Severe Combined Immune Deficiency (SCID) and Combined Immune Deficiency (CID) Prior to Allogeneic Hematopoietic Cell Transplantation: Practice Guidelines and Research Questions
, Spring 2009
Bethesda, MD, United States
Contact for additional information: Dr. Linda M. Griffith, NIAID 301-496-7104
DescriptionWe aim to accomplish and/or make progress toward the following objectives: (1) Facilitate continued discussion and team-building of pediatric hematopoietic cell transplant physicians and pediatric immunologists to work together to develop a North American consortium for treatment of children with PID. The workshop of May 2008 set in motion an important collaborative effort. This new workshop will focus on challenging aspects of SCID/CID not previously addressed. 2) Conduct a survey of current practices in the workup and management of children with SCID/CID, in preparation for HCT.Utilizing the results of the survey, we will (3) identify questions for future clinical research, and (4) develop best current practice parameters (or guidelines) in this area.The document will be published in a respected peer reviewed journal.